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   Merle Reeseman and Sen. Arlen              Specter (PA) Merle Reeseman and Sen. Arlen Specter (PA)

Speak Out about Legislation that Impacts Pulmonary Hypertension Patients

Help your senators and representative make the right choice when it comes to legislative issues that impact the PH community. Contact them using the tips and talking points provided here. Then, share these alerts with your family and friends and ask them to reach out too.

If you plan to take action at least three times a year, join the 435 Campaign.

Invite your Member of Congress to the 2014 Congressional Luncheon!

The Congressional Luncheon is our chance to educate Congress about PH and to create allies in our fight for a cure by letting them know how they can help. Contact your Member of Congress and invite them to the Congressional Luncheon today! Invite by Email Invite by Phone

Pulmonary Hypertension Research and Diagnosis Act of 2013

The Pulmonary Hypertension Research and Diagnosis Act of 2013 seeks to give people living with PH longer, better lives. The bill is different from previous PH legislation in big ways, including having no impact on the budget.

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Patients' Access to Treatments Act of 2013

Many medications for life-threatening diseases like PH are included in “specialty tiers,” a pricing category that costs patients thousands of dollars per month and makes treatments unaffordable to many. The Patients’ Access to Treatment Act of 2013 seeks to reduce the cost of medication by eliminating these specialty tiers.

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Lobby Locally!

Educate your elected officials about PH and build their support for our bill in Congress. Get started by watching the recording of our webinar


Contact info for elected officials

Tips for communicating with Members of Congress

Overview of the legislative process

Sign up for Alerts

If you plan to take action at least three times a year, join the 435 Campaign.

Not ready to join? Receive updates through the Advocacy Action Alert List instead.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.