Take Action!

   Merle Reeseman and Sen. Arlen              Specter (PA) Merle Reeseman and Sen. Arlen Specter (PA)

Speak Out about Legislation that Impacts Pulmonary Hypertension Patients

Help your senators and representative make the right choice when it comes to legislative issues that impact the PH community. Contact them using the tips and talking points provided here. Then, share these alerts with your family and friends and ask them to reach out too.

If you plan to take action at least three times a year, join the 435 Campaign.

Pulmonary Hypertension Research and Diagnosis Act of 2013

The Pulmonary Hypertension Research and Diagnosis Act of 2013 seeks to give people living with PH longer, better lives. The bill is different from previous PH legislation in big ways, including having no impact on the budget.

Take Action

Patients' Access to Treatments Act of 2013

Many medications for life-threatening diseases like PH are included in “specialty tiers,” a pricing category that costs patients thousands of dollars per month and makes treatments unaffordable to many. The Patients’ Access to Treatment Act of 2013 seeks to reduce the cost of medication by eliminating these specialty tiers.

Take Action

Lobby Locally!

Educate your elected officials about PH and build their support for our bill in Congress. Get started by watching the recording of our webinar

Toolbox

Contact info for elected officials

Tips for communicating with Members of Congress

Overview of the legislative process

Sign up for Alerts

If you plan to take action at least three times a year, join the 435 Campaign.

Not ready to join? Receive updates through the Advocacy Action Alert List instead.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.