There are many resources available to help make PH advocacy approachable no matter what your experience level. Look for links to these tools and tips throughout the Advocacy Action Center, or browse the full list here.

PHA staff are always available to supplement these resources with a personal conversation. Contact 301-565-3004 x749 or

Below resources are PDFs unless indicated otherwise.

PH Research and Diagnosis Act Resources

Contact Information for Your Members of Congress

Tips for Communicating with Members of Congress

Sample Scripts and PH Talking Points

Overview of the Legislative Process

Empowered by Hope

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.