Advocacy Action Center

PH Professional Network (formerly PH Resource Network) at the Capitol

The voice of the PH community combines the personal stories of thousands of patients, caregivers, friends and medical professionals. These stories are powerful tools in the search for better treatments, more PH awareness and, one day, a cure. They help us find allies in the fight for a cure, including allies in Congress.

Each year, the United States Congress decides how much money to spend on federal programs such as the National Institutes of Health (NIH), Centers for Disease Control (CDC) and the Food and Drug Administration (FDA). These government agencies fund research studies and public education initiatives that are critical to finding better treatments and a cure for PH. If we want Congress to continue to support these key programs, we have to educate them about this disease and ask them to help the PH community. 

Add your voice to those of PHers across the country working to ensure that all 435 Members of Congress know how important PH research and education is to this community. Here's how you can get started:

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.