Advocacy Action Center
The voice of the PH community combines the personal stories of thousands of patients, caregivers, friends and medical professionals. These stories are powerful tools in the search for better treatments, more PH awareness and, one day, a cure. They help us find allies in the fight for a cure, including allies in Congress.
Each year, the United States Congress decides how much money to spend on federal programs such as the National Institutes of Health (NIH), Centers for Disease Control (CDC) and the Food and Drug Administration (FDA). These government agencies fund research studies and public education initiatives that are critical to finding better treatments and a cure for PH. If we want Congress to continue to support these key programs, we have to educate them about this disease and ask them to help the PH community.
Add your voice to those of PHers across the country working to ensure that all 435 Members of Congress know how important PH research and education is to this community. Here's how you can get started: