Trish Duque, Spur a Cure for PH 2011

The pulmonary hypertension community is made up of thousands of people in communities all across the country and around the world. Each of us has a story to tell and we can all use our stories to raise awareness of PH among our friends and neighbors. There are many ways to raise awareness of PH in your community. Here are a few ideas to get started. Be sure to contact PHA for resources and support!



Get started raising awareness in your community today!

Contact Katie
301-565-3004 x749 or

Trudy Seidel and Carl Hicks“You can’t stop trying - someone will listen. It’s our fight ”
-Trudy Seidel

Awareness in Ecuador

Martha holding a Survival Guide

Read about one woman’s campaign to bring PH awareness and education to health officials in Ecuador.

Read Article

Raye Bohn“I get to work with heroes… People need to hear your story. Don’t be afraid to tell it. Amazing things will be happening in the next few years. Please be a part of the changing history of this illness. Let each of us say that we played a part in bringing forth a cure.”
-Raye Bohn, PH Patient

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.