Media Action Network: Everyday people telling extraordinary stories


The voice of the PH community is built on the personal stories of thousands of patients, caregivers, friends and medical professionals. Each of these stories is a powerful tool for saving lives and working towards a cure.

Join growing ranks of Media Action Network members who work together to raise awareness of PH every single day! Hundreds of PHers have already used free Media Action Network materials to share their stories with the media, promote special events and support group meetings and educate their communities.

Join the Media Action Network

Contact 301-565-3004 x753 or MediaAction@PHAssociation.org for tips, ideas and free media materials.


Shine the Media Spotlight on PH!

PH patient Jeannette Morrill and Mollie Katz, PHA’s Vice President of Community Engagement, share strategies for catching journalists attention and getting media coverage.

Watch the webinar

Online Press Room -- A Great Resource For Reporters

PHA's Press Room provides reporters with essential information on PH so they can stop researching and focus on your story.

Visit PHA's Online Press Room

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.