Media Action Network: Everyday people telling extraordinary stories

PH Community Raises Awareness on The Today Show

The voice of the PH community is built on the personal stories of thousands of patients, caregivers, friends and medical professionals. Each of these stories is a powerful tool for saving lives and working towards a cure.

Join growing ranks of Media Action Network members and commit to pitching a media story once a year. Hundreds of PHers have already used free Media Action Network materials to share their stories with the media, promote special events and support group meetings and educate their communities. Together we can make a difference!

Join the Media Action Network

Contact 301-565-3004 x753 or MediaAction@PHAssociation.org if you have any questions.


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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.