2013 Sponsorship opportunities
In 1997, PH Awareness Month was born from the simple tables of hospitals and clinics. What started as a humble awareness initiative for medical professionals rapidly evolved into a nationwide PH awareness campaign. Through the years, PH Awareness Month has facilitated the creation of valuable programs for the PH community and has placed pulmonary hypertension in the public’s consciousness. This year’s theme, "Racing Toward a Cure," highlights the determination and progress the PH field has already made toward the ultimate finish line: a cure. PHA invites your support and understanding of all that our programs offer for PH patients, caregivers and medical professionals.
More information about 2013 PH Awareness Month sponsorship opportunities is listed below.
To reserve a sponsorship or to seek additional information, please contact Maggie Bahrmasel at MaggieB@PHAssociation.org or 301-565-3004 x756.
Benefits and Policies
PHA is pleased to recognize sponsors at the folloowing levels for the 2013 PH Awareness Month:
Sponsor recognition is outlined in the individual sponsorship descriptions. For sponsorships that support the continuation of an existing program, sponsor recognition will begin in November 2013 (PH Awareness Month) and continue through October 2014. For sponsorships that support the development and implementation of a new program, the sponsor will be recognized from the date of launch for a period of twelve months. Sponsors of printed resources will be recognized until the resource is exhausted.
Right of First Refusal
Because all 2013 opportunities are co-sponsorships, there will be no right of first refusal process.
AWARENESS MONTH SPONSORSHIP OPPORTUNITIES
Sponsorship opportunities for the 2013 PH Awareness Month have been broken down into five categories to help you find the sponsorship that best aligns with your company's interests:
You can also download the 2013 PH Awareness Month sponsorship document in PDF.
Advocacy & Awareness Initiatives
NEW! Patient Access Program
$25,000 (minimum) co-sponsorships*
In recent years, rapidly changing policies in the PH field have left many PH patients struggling to access expert care and adequate treatment. As shifting insurance and pharmacy initiatives create chaos for patients and their families, PHA plans to significantly expand the Patient Access Program to identify and address concerns about public and private insurance at the national and state level, as well as issues with access to care through specialty pharmacies.
PHA’s Insurance Advocacy and Education program focuses on ensuring that patients have access to the treatment they need to improve their quality of life by empowering patients to be self-advocates and mobilizing leading experts in the field to respond to changes in policy and regulations. Sponsorship of PHA’s insurance related activities supports not only its advocacy efforts, but also quarterly webinars, two unbranded ads per year in PHA’s Advances in Pulmonary Hypertension journal, the distribution of Insurance-in-an-Instant planning guides for support group leaders, ongoing content development and promotion of the Online Insurance Guide, monthly Coverage Connection e-newsletters and many other online educational resources.
In addition to the Insurance Advocacy and Education program, PHA plans to expand the Specialty Pharmacy Advisory Board (SPAB). The SPAB is an inclusive partnership of patients, caregivers, medical professionals, specialty pharmacies, pharmaceutical companies, Caring Voice Coalition (CVC) and PHA that seeks to provide patients with a designated feedback forum and observe trends in the relationship between patients and their specialty pharmacy. Sponsorship of the SPAB supports the creation and implementation of the Board, including a web forum for patient input to be housed on the PHA website, quarterly review meetings with specialty pharmacies, and promotion of the SPAB by both PHA and CVC.
Sponsor recognition for the Insurance Advocacy and Education program will include acknowledgement in the e-newsletter promotion of four quarterly webinars and on the concluding slide of each webinar. Sponsor recognition for the Specialty Pharmacy Advisory Board will include acknowledgement on the PHA web forum. In addition, sponsors for both programs will be recognized on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
*Both programs mentioned above create a total budget of $211,000. In order to defray the total cost of these critical programs, PHA is seeking minimum sponsorships of $25,000. Sponsorships may be applied to one or both programs.
2013 Congressional Luncheon
Note: sponsorship confirmation is required by Oct. 1, 2013
Reserved: Actelion Pharmaceuticals
Since 2009, the Congressional Luncheon has served as an invaluable tool for connecting the PH community with their Members of Congress. Now, with the introduction of the Pulmonary Hypertension Research and Diagnosis Act of 2013 (H.R. 2073 and S. 1453) in the House of Representatives and Senate, the Congressional Luncheon is more valuable than ever.
With a neutral budget and the emphasis on collaboration between government health agencies such as the Centers for Disease Control (CDC) and National Institutes of Health (NIH), the PH Research and Diagnosis Act of 2013 is in line with Congressional budget goals, giving it a greater chance of passage. The Congressional Luncheon will serve as the kickoff for this effort, where attendees will educate Members of Congress and their staff about PH from the patient, caregiver and physician perspectives, and share information about PHA’s bill. The 2012 Congressional Luncheon had significant representation from elected officials, Congressional staff members, patients and patient supporters, and PHA anticipates another well attended event in 2013.
Sponsor recognition will include signage, introduction and acknowledgement at the Congressional Luncheon as well as on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
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Connecting to PHA
Specialty Pharmacy Fliers
Reserved: Actelion Pharmaceuticals
Every month, specialty pharmacies reach PHA members and non-members alike through medication packages. Accredo and CVS Caremark, understanding their role in providing patient education and awareness and as part of the Corporate Committee, have provided PHA access to these medication packages. Each of these monthly mailings includes a different flier, allowing PHA to reach more than 20,000 patients with information on how to handle emergency situations, how to connect to a local support group and how to access PH resources online. This flier is often a patient’s first introduction to PHA and its community of information, connection and hope.
Sponsor recognition will include acknowledgement on each of the next 12 Specialty Pharmacy monthly fliers (reaching more than 20,000 patients each month; 240,000 each year) on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
PHA Signature T-shirts
PHA Signature T-shirts are provided to special event organizers and volunteers as a benefit of hosting a Special Event fundraiser within their community. They are an effective way to promote solidarity among event planners and volunteers, while simultaneously raising awareness for PH. The Signature T-shirts allow PHA to promote awareness of PH, brand special events as PHA-supported activities, and spread the message of hope each time members of the community wear their shirts. PHA plans to produce 2,000 T-shirts. In addition, the T-shirts will be made available for purchase through the PHA store.
Sponsor recognition will include printed logos from each sponsoring corporation on the PHA Signature T-shirt sleeve, and acknowledgement on PHA’s Awareness Month website as well as in the quarterly newsletter Pathlight.
New Member Welcome Packet
During the past year, PHA welcomed more than 1,000 new patients and family members to its Community of Hope. PHA extends a warm welcome to each new member by providing a New Member Welcome Packet that highlights PHA’s resources and services and provides information on how to get involved with programs to advance PHA’s mission, including the 435 Campaign, PHAware and a “Jump In!” section where patients and families can get a sneak peek at new initiatives at PHA.
Sponsor recognition will include acknowledgement on the New Member Welcome Packet, on PHA’s Awareness Month website, as well as the quarterly newsletter, Pathlight.
PHA folders introduce new and existing members of the PH community to PHA’s programs and services by featuring important brochures, fliers and publications in one comprehensive packet. The folders, which are used to make new PHA member packets and to distribute information at PHA events and meetings and through the mail, offer continuous visibility and a broad reach. This year, PHA plans to redesign the folders and increase their reach by using them to distribute information about new initiatives. PHA plans to print and distribute 30,000 folders.
Sponsor recognition will include acknowledgement on the PHA folders, as well as on PHA’s Awareness Month website and the quarterly newsletter Pathlight.
"Meet PHA" Brochure
Thanks in large part to the PHA Medical Education Fund and PHA’s expanding structure across the nation, more people are coming into contact with PHA than ever before. While PHA has many brochures for individual programs and services, this brochure answers the simple but important question, “What is PHA?” Due to the brochure’s popularity, PHA is seeking to reprint the brochures for continued distribution over the next year.
Brochures will be made available at PHA on the Road forums, medical and patient conferences and Building Medical Education in PH events. Additionally, PHA will provide copies to special event hosts, support group leaders, and workplace fundraisers, and include copies in media kits and general inquiry packets. PHA plans to print and distribute 15,000 brochures.
Sponsor recognition will include acknowledgement on 15,000 “Meet PHA” Brochure and on PHA’s Awareness Month website, as well as in the quarterly newsletter Pathlight.
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Programs for Patients & Families
NEW! Newly Diagnosed Patient Program
According to PHA’s study, The Impact of Pulmonary Arterial Hypertension (PAH) on the Lives of Patients and Caregivers, newly diagnosed patients report a need for succinct, comprehensive information at their time of diagnosis regarding their emotional concerns, treatments and how their lives may change as a result of PH. The Newly Diagnosed Patient Program provides comprehensive, easy-to-understand resources for newly diagnosed patients and their families, including:
- The Envelope of Hope for newly diagnosed adult patients and their caregivers, including Envelope of Hope referral postcards for distribution at PH centers and associated disease organizations;
- Pediatric Resources for Families and Friends and PH Handbook for Families for youth patients and their families;
- Understanding PH brochure with information about the disease and treatment options;
- When an Adult in Your Life is Diagnosed with PH booklet for children and teens;
- PH resources magnet with important phone numbers and tips;
- “10 Things to Do” bookmarks with the top 10 tips for living with PH;
- PH Ready and PH Ready Caregivers webinar series designed to provide support and information specific to the first six months after diagnosis;
- Bi-annual live webinars for newly diagnosed patients with a companion webinar for caregivers; and
- Bi-annual webinar trainings for peer supporters who frequently interact with newly diagnosed patients.
Sponsor recognition will include acknowledgement on the Envelope of Hope, Resources for Family and Friends, PH Handbook for Families, Understanding PH brochure, When an Adult in Your Life is Diagnosed with PH booklet, PH resources magnet, “10 Things to Do” bookmarks, PH Ready and PH Ready Caregivers webinar series, on the bi-annual webinars for newly diagnosed patients and caregivers, on the bi-annual webinar trainings for peer supporters, on PHA’s Awareness Month website as well as in the quarterly newsletter Pathlight.
Associated Disease Program
According to the REVEAL Registry, more than half of PH patients are living with non-idiopathic PH, meaning they live with an associated condition such as COPD or sleep apnea in addition to PH. In order to reach patients living with PH and a secondary disease, PHA has created the Associated Disease Program, which uses outreach to clinics and associated disease organizations to connect patients with services at PHA.
This year, PHA plans to create a series of four secondary disease webinars, to further engage patients who may be living with more than one disease. In addition, PHA will develop a CTEPH brochure and two new “PH and...” brochures, including “PH and COPD” and “PH and Sleep Apnea.” PHA also plans to print 1,000 of the eight existing “PH and...” brochures, including: Pulmonary Hypertension and Scleroderma, Pulmonary Hypertension and Sickle Cell Disease, Pulmonary Hypertension and HIV, Pulmonary Hypertension and Methamphetamine Use, Pulmonary Hypertension and HHT, Pulmonary Hypertension and Liver Disease, Pulmonary Hypertension and Lupus and Pulmonary Hypertension and CHD.
Sponsor recognition will include acknowledgement on the print and digital copy each of the CTEPH and “PH and...” brochures, on the secondary disease webinars, on PHA’s Awareness Month website as well as in the quarterly newsletter Pathlight.
NEW! Peer Support Program
One of the greatest obstacles PH patients and caregivers face is feeling isolated and alone, worried that no one understands what it’s like living with this disease. PHA’s Peer Support Program works to end that isolation, and provide patients, their caregivers and families with the emotional, social and practical assistance necessary for managing PH and staying healthy. Trained PH community members serve as peer mentors on daily and monthly telephone and email support networks, lending a sympathetic ear, giving encouragement, and using their own experiences with PH to help others identify helpful resources.
Peer supporters currently receive an average of 20 calls and emails each day, with an average of 30 more participants on monthly telephone support groups for patients, parents and caregivers. To supplement this support, 22 PH email mentors are actively mentoring at least one mentee. This year, in addition to sustaining the peer supporter networks, PHA plans to design and distribute 50 training manuals for peer supporter trainings, facilitate one-on-one training and follow up with each peer supporter, and distribute 30,000 peer support wallet cards, which will include information about the program.
Sponsor recognition will include acknowledgement on the training manual, peer support wallet card, as a part of five peer supporter trainings, on the peer support telephone line and email support network web pages, on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
Psychosocial Support Program
In 2012, PHA conducted The Impact of Pulmonary Arterial Hypertension (PAH) on the Lives of Patients and Caregivers to complement an earlier European study, and to more fully understand the psychosocial effects of living with PH. In response to patient and caregiver feedback about the prevalence of denial, depression, anxiety and stress, PHA developed population-specific Coping with Pulmonary Hypertension guides for newly diagnosed patients, long-term survivors, parents, caregivers and teens. Since then, PHA has expanded the goals of the Psychosocial Support Program to empower patients to determine coping skills that best fit them, to help them stay mentally well with their illness.
In addition to offering the coping guides on the website for download, PHA plans to print 1,000 of each guide and 20,000 psychosocial support postcards to distribute directly to patients, PH centers and associated disease organizations. PHA also plans to design and distribute 1,000 Points of Transition: Self-Management Psychosocial Resources booklets, with information about resources that patients can use by themselves to sustain their mental health. With the help of a professional with a background in social work, PHA will continue training its community leaders in how to address psychosocial issues that they encounter as they offer support through the PH Email Mentor program and Patient-to-Patient telephone support line.
Sponsor recognition will include acknowledgement on 1,000 of each of the five Coping with Pulmonary Hypertension guides, 20,000 psychosocial support postcards, on 1,000 Points of Transition booklets, on the Coping with PH website, on the webinar training for leaders, on PHA’s Awareness Month website as well as in the quarterly newsletter Pathlight.
PHA Special Event Toolkit
A key part of PHA’s success is its community’s enthusiasm for fundraising through special events. The Special Event Toolkit will be a digital and printed resource containing helpful tips, timelines and examples to assist special event planners in hosting PHA Signature Events such as Fun Walks/Runs for a Cure and Periwinkle Parties. The easy-to-understand, how-to information and structured templates will ensure that volunteer event planners, regardless of prior fundraising experience, can host successful community-based PHA Special Event fundraisers. The sponsorship will cover the creation and distribution of 100 printed toolkits and 500 flash drives containing a digital copy of the toolkit, including editable template forms compatible with Microsoft Office.
Sponsor recognition will include acknowledgement on the digital and printed Special Event Toolkit, including the flash drive case, on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
Support Group Leader Manual
The Support Group Leader Manual is a valuable tool for both new and experienced support group leaders that provides comprehensive instructions from the first steps of planning a meeting to resources for the ongoing management of group dynamics. This year, PHA will be doing a complete redesign of the current manual, breaking it into three segments so leaders can get exactly what they need, whether general information, specific guidelines for setting up an initial meeting, or ongoing management of a group. Copies will be mailed to all 300 support group leaders, as well as new leaders as they are oriented.
Sponsor recognition will include acknowledgement on the Support Group Leader Manual and PHA’s Awareness Month website, as well as in the quarterly newsletter Pathlight.
Support Group Welcome Brochure
As a PH Support Group leader, devoting special attention to newly diagnosed patients and new support group members while simultaneously providing for the needs of the larger group can be a tough act to balance.
PHA aims to make this balancing act easier by giving leaders the Support Group Welcome Brochure to provide an ample introduction to PHA and their support group without ignoring the continuing needs of long-term group members. The brochure explains the purpose of the support group, helps new members know what to expect, provides access to other valuable PHA resources and provides a way for new members to connect with PHA. PHA plans to design, print and distribute 10,000 brochures to 245 support groups across the country.
Sponsor recognition will include acknowledgement on the Support Group Welcome Brochure and on PHA’s Awareness Month website, as well as in the quarterly newsletter Pathlight.
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Global Program Connections
In order to increase global awareness of pulmonary hypertension and support for patients, PHA works hard to coordinate the collaboration of PH associations around the world. Exhibiting PH resources and distributing publications at international medical meetings each year has proven effective in building a professional network for clinicians and researchers (PHCR) and expanding the reach of PH knowledge to new populations. PHCR’s international membership has grown nearly 15% since 2012, and PHA expects that number to continue to increase. With more than 600 leading physicians in the field as members of PHCR, PHA is anxious to engage those who travel and speak internationally with its message.
This sponsorship will create increased opportunities for face-to-face connections abroad by supporting:
- Exhibiting at international conferences;
- Development of materials that PHA medical leaders can integrate into existing presentation opportunities, as well as distribution of those materials at international conferences;
- Development of two Spanish webinars for PHA Classroom and PHA Online University, to drive Spanish speaking members of the PH community to PHA’s online resources; and
- Expanded international membership in PH Clinicians and Researchers (PHCR).
Sponsor recognition will include acknowledgement on the international section of PHA’s website, on two Spanish webinars, on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
International Seed Grant Program
PHA’s International Seed Grant Program has been instrumental in the development and growth of global PH associations. The formula is simple: applicants must demonstrate to a peer review panel that with a small infusion of cash, they have a plan to more rapidly accelerate the growth and effectiveness of their association and are willing to share their lessons learned as a best practices across the globe.
Every year, the review panel awards up to three grants of a maximum of $10,000 each or six grants of up to $5,000 each. The grant proposals are reviewed by seasoned leaders who have helped to build PH associations in the U.S. and other nations, including at least one past International Seed Grant winner. Their role goes beyond peer review to mentoring, and they often help applicants refine their ideas to increase the likelihood of success.
Sponsor recognition will include acknowledgement on PHA’s Seed Grant website, on print and web materials produced to advertise or award the grants, on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
International Survival Guide Distribution
PHA’s comprehensive Pulmonary Hypertension: A Patient’s Survival Guide is a “soup-to-nuts” book for patients living with PH. Over the years, PHA has received requests from individuals and PH associations in other countries to translate the Survival Guide into their native language. To date, the Survival Guide has been translated by medical experts fluent in English into Japanese, simplified Chinese, Spanish, Farsi, Korean and Hebrew with plans to translate the text into Dutch. PHA’s goal is to distribute copies of the Survival Guide to every association with an explanation of how the translation process works. The translations, which undergo medical review, benefit not only patients living in that country but also patients in the U.S. whose primary language is not English.
Sponsor recognition will include acknowledgement in the letter that accompanies Survival Guide mailings, on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
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Sustaining PHA's Programs and Services
2013 End-of-Year Matching Fund
$25,000 co-sponsorships; each company may set its own matching challenge
Reserved: Actelion Pharmaceuticals
With matching gifts from members of the PHA Corporate Committee, the End-of-Year fundraising campaign has been immensely successful. When donors know that the impact of their gift will be doubled or tripled from matching gifts, their motivation to support PHA increases considerably. In 2012, despite continued economic hardships, the greatest number of donors yet rose to the occasion and made gifts totaling more than $100,000 to PHA for a campaign of more than $125,000.This unrestricted giving covers a significant portion of the costs of essential initiatives designed to advance PHA’s mission. PHA is again seeking sponsors to match its constituents’ donations for the 2013 campaign.
Sponsor recognition will include acknowledgement in the End-of-Year appeal, PHA website home page, PHANews, as well as on PHA’s Awareness Month website and in the quarterly newsletter Pathlight.
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PHA thanks the sponsors of 2013 PH Awareness Month!
To support 2013 PH Awareness Month, please visit the sponsorship page.