Online Chat Leader Profile



Diagnosed in 2006

"I'm retired from careers in information management, education and journalism. I am active with my local support group, and love to talk about living with PH."

About Ellen:

  • Born in 1957
  • Lives in Texas
  • Type of PH: Associated with another disease
  • Associated Conditions: Scleroderma
  • Languages: English

Ellen feels comfortable discussing her experiences with:

  • inhaled medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • working with PH
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Ellen:

Fill out my online form.
Disclaimer: Online Chat Leaders are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.