Online Chat Leader Profile

Frances

Frances

Diagnosed in 2012

"I'm disabled, I'm active in my local support group, I'm a movie buff and a former journalist and medical writer." 

About Frances:

  • Born in 1966
  • Lives in Maryland
  • Type of PH: Associated with another disease
  • Associated Conditions: Sleep Apnea
  • Languages: English

Frances feels comfortable discussing her experiences with:

  • oral medication
  • supplementary oxygen
  • depression and mental health issues
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Frances:

Fill out my online form.
Disclaimer: Online Chat Leaders are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.