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e-Learning Events
Educational Events from the Comfort of Your Own Home or Office

Take Part in Educational Events and View Archives from Home --
Online Q&A Chats, Conference Call Discussions, and Webinar Presentations

Made possible through unrestricted educational grants from Eli Lilly & Company and Pfizer Inc.

Schedule Click on link to learn more
October Raise Your Voice! Media Advocacy with PHAware
November Ways to Make the Most Out of Your Medical Appointments
December

Patients and Social Security: Navigating Supplemental Security Income (SSI)

January PH Treatments: What’s on the Horizon
February State of PHA – An Annual Update from PHA President Rino Aldrighetti
Check back for more info on times and how to join, or sign up for PHANews to receive all the latest PH news.

Archives

Exercise & Nutrition: Ways to a Healthier PH Lifestyle
8/12/08 Chat Transcript & Reference Materials
Emergency 101: How to Prepare Yourself and Others for PH Emergencies
8/26/08 Chat Transcript & Reference Materials
Media Promotion for Special Events: Make the Most of It!
9/30/08 Webinar Recording & Reference Materials

PH AwareRaise Your Voice! Spreading Awareness with the PHAware Campaign

Tuesday, October 14, 2008
7:00 pm ET
Webinar (web & audio)

Register for webinar
A confirmation email will provide login for web and call-in for phone. You can register up to and during the event.

Join PHA's Nathan Barker and PHAware member Melissa Johnson (pictured (left) with daughter Lauren) for an interactive tutorial on how to get involved with PHAware, how to craft a media outreach strategy, and tips on interacting with the media. Be sure to bring your questions for our guest speaker on how she found success raising awareness in her own community. Visit the PHAware campaign site

Presenters

Nathan BarkerNathan Barker
As the Advocacy and Awareness Associate, Nathan coordinates PHA's media efforts. Through the grassroots campaign, PHAware, Nathan supports PH community members as they share their story with the media. He monitors press coverage on an ongoing basis and is the first point of contact for press inquiries.

Melissa & Lauren JohnsonMelissa Johnson
Melissa Johnson, pictured (left) with daughter Lauren, is a Special Events organizer and mother of a PH patient from Oklahoma. Last August, Melissa and her teenage daughter promoted their PH fundraiser and spread awareness by giving interviews and getting three articles published in three newspapers. Check them out here: Edmond Teen Fights Back; Oklahoma City teen paints hope despite battle with rare disease; Teen Raises Funds for PHA.

 


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