Raise Your Voice! Spreading Awareness with the PHAware Campaign
Tuesday, October 14, 2008
7:00 pm ET
Webinar (web & audio)
Register for webinar A confirmation email will provide login for web and call-in for phone. You can register up to and during the event.
Join PHA's Nathan Barker and PHAware member Melissa Johnson (pictured (left) with daughter Lauren) for an interactive tutorial on how to get involved with PHAware, how to craft a media outreach strategy, and tips on interacting with the media. Be sure to bring your questions for our guest speaker on how she found success raising awareness in her own community. Visit the PHAware campaign site
Presenters
Nathan Barker
As the Advocacy and Awareness Associate, Nathan coordinates PHA's media efforts. Through the grassroots campaign, PHAware, Nathan supports PH community members as they share their story with the media. He monitors press coverage on an ongoing basis and is the first point of contact for press inquiries.
Melissa Johnson
Melissa Johnson, pictured (left) with daughter Lauren, is a Special Events organizer and mother of a PH patient from Oklahoma. Last August, Melissa and her teenage daughter promoted their PH fundraiser and spread awareness by giving interviews and getting three articles published in three newspapers. Check them out here: Edmond Teen Fights Back; Oklahoma City teen paints hope despite battle with rare disease; Teen Raises Funds for PHA.
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.