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Get Involved: Fighting for the Cause

>>More resources about getting involved

 -indicates PHA 2012 International PH Conference session
2010 International PH Conference session -indicates PHA 2010 International PH Conference session


Voice and Slides

 

PHA's PSA Media Blitz – From Rare to Everywhere
6/4/14
Presenters:
-Steve Van Wormer, PHA Board of Trustees Member
-Elisabeth Williams, PHA Grassroots Campaigns Senior Manager

     

 Words (and Blogging!) for Wellbeing Panelists
Video and Slides

 

Words (and Blogging!) for Wellbeing
 6/22/12
Presenters:
-Becca Atherton, PH Patient, Pathlight Contributor & Active Blogger in the PH Teen Community
-Ellie Falaris Ganelin, PHA Design & Publications Associate
-Megan Mallory, PHA Associate Director, Publications
-Kiara Tatum, PH Patient, Support Group Leader & Co-coordinator of the Generation Hope Blog 

   

 

Put the Special in Special Events Panelists
Video and Slides

 

Put the Special in Special Events
 6/22/12
Presenters:
-Nicole Cooper, Vision of Hope Gala, Md.
-Leslie Mahaney, PHA Special Events Program Associate
-Jessica McKearin, PHA Associate Director, Special Events
-Jeannette Morrill, New England PH Forum & Swinging for a Cure Golf Tournament, Maine
-Amy Piazza, Rolling PHor a Cure Bunco Tournament, Fla.
-Joanne Sperando-Schmidt, New York Fun Walk, N.Y.

   

 

Harnessing the Power of Your Online Social Networks Panelists
Video and Slides
 

Harnessing the Power of Your Online Social Networks
 6/22/12
Presenters:
-Alex Flipse, Facebook PHriend, Tweeter
-Diane Greenhalgh, PHA Director, Web Services
-Pam Pedersen, e-Advocate, Facebook PHriend
-Sean Wyman, Facebook PHriend, Tweeter, Blogger, YouTuber 

   

 

Creativity for the Community: Exploring the Lantos Community Service Awards Panelists
Video and Slides
 

Creativity for the Community: Exploring the Lantos Community Service Awards
 6/22/12
Presenters:
-Mollie Katz, PHA Vice President, Community Engagement
-Previous Lantos Award Winners 

   

 

From Your Hometown to Capitol Hill: Become Your Own Advocate Panelists
Video and Slides
 

From Your Hometown to Capitol Hill: Become Your Own Advocate Panelists
 6/22/12
Presenters:
-Dane Christiansen, PHA's Washington Representative
-Joy Gore, 435 Campaign Member
-Elisabeth Williams, PHA Grassroots Campaigns Manager

   

 

Media Matters! Panelists
Video
 

Media Matters!
 6/22/12
Presenters:
-Merle Reeseman, PHAware Campaigner
-Jessica Sanchez, Reporter and Anchor, WKMG-TV Orlando
-Elisabeth Williams, PHA Grassroots Campaigns Manager 

   

 

Creative Connections: Tips for Networking During (and After!) Conference Panelists
Video
 

Creative Connections: Tips for Networking During (and After!) Conference
 6/22/12
Presenters:
-Debbie Castro, PHA Director, Volunteer Services
-Kim Ford, DC and Silver Spring Capital Breathers PH Support Group Leader
-Sally Maddox, Atlanta-region PH Support Group Leader

     
Recipe for a Successful Lantos Grant
Voice and Slides
  Recipe for a Successful Lantos Grant
1/29/2013
Presenter:
-Mollie Katz, PHA's Vice President of Community Engagement
     
Get in on the PH Awareness Month Action
Voice and Slides
  Get in on the (PH Awareness Month) Action!
9/26/2012
Presenters:
-Elisabeth Williams, Grassroots Campaigns Manager, PHA

-Jessica McKearin, Director of Special Events, PHA
-Ellen Leoni, Development Associate, PHA

     
Shine the Media Spotlight on YOUR PH Story
 Voice and Slides
  Shine the Media Spotlight on YOUR PH Story
9/20/2012
Presenters:
-Jeannette Morrill, PHAware Campaign Member
-Mollie Katz, PHA's Vice President of Community Engagement
-Elisabeth Williams, PHA's Grassroots Campaigns Manager
     
Peer to Peer Fundraising - Welcome!
Voice and Slides
  Peer to Peer Fundraising: Using your Personal Network to Increase Attendance and Funds for your Event
4/19/12
Presenters:
-Jeff Love, Account Manager at FirstGiving
-Jessica McKearin, PHA's Associate Director of Special Events
-Leslie Mahaney, PHA's Special Events Program Associate
     
Make a Difference in the PH Community: How to Apply for a Lantos Community Service Award
Voice and Slides
  Make a Difference in the PH Community: How to Apply for a Lantos Community Service Award
1/18/12
Presenter:
-Mollie Katz, PHA's Vice President of Community Engagement
     
 Spring into Action: Planning your Spring Special Event
Voice and Slides
  Spring into Action: Planning your Spring Special Event
1/12/12
Presenters:
-
Jessica McKearin, PHA's Associate Director of Special Events
-Leslie Mahaney, PHA's Special Events Program Associate
     
The Power of One: Awareness Month 2011
Voice and Slides
  The Power of One: Getting Involved in Awareness Month 2011
10/05/11
Presenters:
-Katherine Kroner, PHA's Director of Advocacy and Awareness
-Elisabeth Williams, PHA's Grassroots Campaigns Associate
-Jessica McKearin, PHA's Associate Director of Special Events
-Jennifer Kaminski, PHA's Development Manager
     
Increase PH Awareness and (Generation) Hope in the Media!
Voice and Slides
  Increase PH Awareness and (Generation) Hope in the Media!
8/30/11
Presenters:
-Elisabeth Williams, PHA's Grassroots Campaigns Associate
-Kimberlee Ford, Support Group Leader, Generation Hope Member and PH Awareness Raiser
     
Fighting the Cause Online 2.0Voice and Slides
 
Fight the Cause Online 2.0
7/13/11
Presenters:

-Elisabeth Williams, PHA's Grassroots Campaigns Associate
-Colleen Brunetti, Generation Hope Young Adult Advisory Board, PHA's Board of Trustees
-Jennifer Kaminski, PHA's Development Manager
-Lucia Martuccio, Web of Friends online fundraiser
Lobby Locally Opening slide with photo of district visits
Voice and Slides
  Lobby Locally: Fighting PH through District Visits
6/15/11
Presenters:
-
Gavin Lindberg, PHA's Washington Representative; Vice President, Health and Medicine Counsel of Washington
-Katie Kroner, PHA's Director of Advocacy and Awareness
     

Making the most of your awareness month special event title slide
Voice and Slides

 

Making the Most of Your Awareness Month Special Event
6/2/11
Presenters:
-
Jessica McKearin, PHA's Associate Director of Special Events
-Jenna Roe, PHA's Special Events Program Associate
-Amy Moseley, Spur a Cure for PH
-Missy Godina, Walk 2 Cure PH: The Ellie Godina Memorial Walk
-Joanne Schmidt, The 7th Annual New York Fun Walk

     
Thumbnail of Media Matters start slide
Voice and Slides
 

Media Matters: Working with the Media to Raise Awareness
3/28/11
Presenters:
-
Elisabeth Williams, PHA's Grassroots Campaigns Associate
-Jeff White, Environics Communications
-Hillarie B. Turner, Environics Communications

     


Voice and Slides

 

Building Community Awareness About Your Child's Medical Condition
3/17/11
Presenters:
-Jessica McKearin, PHA's Associate Director of Special Events
-Katherine Kroner, PHA's Director of Advocacy and Awareness

     
thumbnail slide Special Events 101
Voice and Slides
  Special Events 101: Planting the Seeds for a Successful Spring Fundraiser
2/3/11
Presenters:

-Jessica McKearin, PHA's Associate Director of Special Events
-Jenna Roe, PHA's Special Events Program Associate
-Carol Lindstrom, PHenomenal Hope for a Cure

-Katy Hayes, Pulmonary Pints Pub Crawl
-Jen Broderick-Anderson, Abby’s Road PHun Walk

     
slide with people and puzzle pieces - PHA Support Groups
Voice and Slides
 

How to Start a Support Group
1/25/11
Presenters:
-Debbie Castro, PHA's Director of Volunteer Services
-Sophie Klein, PHA's Volunteer Services Program Associate

     
Awareness Month webinar screenshot
Voice and Slides
  Climbing Toward A Cure: Getting Involved During Awareness Month 2010 
10/6/10
Presenters:
-Jennifer Kaminski, PHA Development Associate
-Katie Kroner, PHA Director of Advocacy and Awareness
-Elisabeth Williams, PHA Grassroots Campaigns Associate
     
Media Matters webinar screenshot
Voice and Slides
  Media Matters! Working Media into your Special Event
8/19/10
Presenter:
-Elisabeth Williams, PHA Grassroots Campaigns Associate
     
Put the Special in Special Events
Voice and Slides
  Put the Special in Special Events: PHA Local Event Planning & Fundraising 101
8/19/10
Presenters:
-Jessica McKearin, PHA Special Events Manager
-Jenna Roe, PHA Special Events Associate
     
Lobby Locally
Audio
  Lobby Locally! Visit Your Members of Congress without Leaving Your State
7/8/10
Presenters:
-Gavin Lindberg, PHA’s Washington Representative
-Carl Hicks, PHA Board of Trustees, 435 Campaign member
-Charlotte McCabe, Puyallup Washington Support Group Leader, 435 Campaign member
-Diane Ramirez, Piedmont N.C. Support Group Advocacy Co-Chair, 435 Campaign member
     
Congress Works for Me
Audio
  Congress Works for Me: Advocacy as a Means for Your Voice to Be Heard
2010 International PH Conference session 6/26/10
Presenters:
-Raye Bohn
-Janet Cecil
-Diane Ramirez
     

Video and Slides
  From Your Hometown to Capitol Hill: Become Your Own Advocate
2010 International PH Conference session 6/25/10
Presenters:
-Gavin Lindberg, PHA's Washington Representative
-Charlotte McCabe, 435 Campaign Member
-Doug Taylor, 435 Campaign Member
-Elisabeth Williams, PHA Grassroots Campaigns Associate
     
PHA 2.0: Using the Web to Fight Against PH panelists
Video and Slides
  Using the Web to Fight Against PH
2010 International PH Conference session 6/25/10
Presenters:
-Stuart Berwick, Facebook advocate
-Laura D'Anna, DrPH, MPA, Web of Friends fundraiser
-Diane Greenhalgh, PHA Director of Web Services
-Pam Pedersen, e-Advocate
     
Dr. Frantz, Dr. Benza, Jessica Lazar, PA, at the summit of Mt. Kilimanjaro Feb. 2010
Video and Slides
  Put the Special in Special Events
2010 International PH Conference session 6/25/10
Presenters:

-Lauren Johnson, Painting a Stroke of PHenomenal Hope, Okla.
-Melissa Johnson, Painting a Stroke of PHenomenal Hope, Okla.
-Bonnie McGoon, Biennial Rochester PHA Gala, Minn.
-Jessica McKearin, PHA Special Events Manager
-Amanda McKee, St. Louis PHA Dinner and Wine-Tasting, Mo.
-Jack Stibbs, CurePH: The Woodlands Crawfish Festival, Texas

     
Media Matters! panelists
Video
  Media Matters!
2010 International PH Conference session 6/25/10
Presenters:
-Alicia House, PHAware Campaign Member
-Pam Pedersen, PHAware Campaign Member
-Elisabeth Williams, PHA Grassroots Campaigns Associate
     
Have an Innovative Idea? Learn How to Get it Funded
Video and Slides
  Have an Innovative Idea? Learn How to Get it Funded
2010 International PH Conference session 6/25/10
Presenters:

-Adrienne Dern, PHA Senior Vice President
-Kathy Groebner, Bears with Back Packs

-Carol Lindstrom, The Angel Project

     
PHA Grassroots Network Media Training
Voice and Slides
  Media Outreach Training: Making the Most of the Local Media
12/2/09
Presenters:
-Jeff White, a Vice President at Environics Communications
-Annette Markin, PH patient, PHAware Campaign member
     
PH Support Groups
Voice and Slides
  Finding Other Patients Near You: Starting a Support Group
10/29/08
Presenter:
-Debbie Castro, PHA Director of Volunteer Services

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This is a program of the PHA Medical Education Fund, made possible through unrestricted educational grants from our supporters.

 

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