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Living With PH

>>More resources about living with PH

 -indicates PHA 2012 International PH Conference session
2010 International PH Conference session -indicates PHA 2010 International PH Conference session
-indicates
Minneapolis PHA on the Road session

 

Staying Active with PH

     
Voice and Slides   Exercising Mindfully with PH
8/28/14
Presenter:

-Rana Lee Adawi Awdish, MD, Henry Ford Health System
     
Voice and Slides   Understanding How to Maximize Your Independence for Everyday Living
4/9/14
Presenter:

-Stacey Moran Gausling, OT/L and PAH patient, Parkland Memorial Hospital
     
Exercise/Yoga/Tai Chi – What Can Be Done and What To Avoid Panelists
 Video
  Exercise/Yoga/Tai Chi – What Can Be Done and What To Avoid
 6/23/12
Presenters:
-Kelly Chin, MD, UT Southwestern Medical Center, Dallas, Texas (Chair)
-Helena Purl, RN, BSN, CCRC, Baylor College of Medicine, Houston, Texas
-Roxana Sulica, MD, Beth Israel Medical Center, New York, N.Y. 
     
Traveling with PH Panelists
Audio
  Traveling with PH
 6/22/12
Presenters:
-Jeannette Morrill (Chair)
-Gerrilyn Connors
-Marilyn Mears
     
PH Goes to College Panelists
Audio
  PH Goes to College
 6/22/12
Presenters:
-Sean Wyman (Chair)
-Sharon Keefauver
-Emily Stibbs
     
9 to 5 with PH
Audio
  9 to 5 with PH
 6/22/12
Presenters:
-Brittany Riggins (Chair)
-Carly Pollack-Smith
-Leslie Polss
     
Calm, Cool and Collected: Restorative Yoga for the PH Patient
Voice and Slides
  Calm, Cool and Collected: Restorative Yoga for the PH Patient
1/22/13
Presenter:

-Rana Lee Adawi Awdish, MD, Henry Ford Health System
     
Life After Diagnosis: Staying Active with PH
Voice and Slides
  Life After Diagnosis: Staying Active with PH
2/16/12
Presenters:

-Abby Poms, RRT, Duke University Medical Center
-Hannah Lahmeyer
-Melanie Kozak
-Rebecca H. Crouch, PT, DPT, CCS, FAACVPR
     
Working with PH
Voice and Slides
  Working With PH
9/23/10
Presenters:

-Sally Maddox
-Leslie Polss
-Joanne Sperando-Schmidt
     
Hop, Skip and Run: Exercising Your Way to a Healthier and Happier State panelists
Video
  Hop, Skip and Run: Exercising Your Way to a Healthier and Happier State
2010 International PH Conference session 6/26/10
Presenters:

-Roham Zamanian, MD, FCCP*, Stanford University, Chair
-Nicholas Hill, MD, Tufts Medical Center
-Rajeev Saggar, MD, David Geffen School of Medicine at UCLA
-Barbara Smithson, RN, MSN, Rhode Island Hospital
     
PAH Traveling Tips panelists
Audio
  PAH Traveling Tips
2010 International PH Conference session 6/25/10
Presenters:
-Ann Arnott
-Evelyn Crespo
-Ellen Harris
-Angel Gorman, Lincare
     
Young Adults with PH: 18+ presenter, Lindsay Nicol
Audio
  Young Adults with PH: 18+
2010 International PH Conference session 6/25/10
Presenters:
-Emily Mitchell
-Lindsay Nicol
-Carson Smith
-Sean Wyman
     
Exercise and PH
Voice and Slides
  Exercise and PH: The Risks and the Benefits
4/8/10
Presenter:

-Barbara Smithson, RN, MSN, Rhode Island Hospital
     
Summer "PHun" Tips
Voice and Slides
  Summer "PHun" Tips
6/9/09
Presenter:

-Mary Bartlett, MS, RN, CS, FNP, Winthrop Pulmonary Hypertension Center, Support Group Leader
     

Nutrition and PH

     
Obesity, Diet Treatments and PH Panelists
Video
  Obesity, Diet Treatments and PH
 6/23/12
Presenters:
-Namita Sood, MD, FCCP, Ohio State University Medical Center, Columbus, Ohio (Chair)
-Loida Johnson, CRNP, University of Maryland Medical Center, Baltimore, Md.
-Tim Lahm, MD, Indiana University School of Medicine, Indianapolis, Ind.
     
Defensive Dining: Eating to Maintain Health and Avoid Complications – How to Eat Smart Panelists
Video
  Defensive Dining: Eating to Maintain Health and Avoid Complications – How to Eat Smart
 6/23/12
Presenters:
-Charles Burger, MD, Mayo Clinic College of Medicine, Jacksonville, Fla. (Chair)
-Glenna Traiger, RN, MSN, University of California Los Angeles, Los Angeles, Calif.
-Karen Verlander, PH patient, Jacksonville, Fla.
     
Can What You Eat Affect Your Disease State?
Voice and Slides
  Can What You Eat Affect Your Disease State?
4/19/13
Presenter:
Anna R. Hemnes, MD, Vanderbilt University Medical Center
     
Keys to Healthy Food Shopping
Voice and Slides
 

Keys to Healthy Food Shopping
12/14/12
Presenter:
-Misty Lewis, CHHC, AADP, Naturally Sweet Nutrition (www.naturallysweetnutrition.com)

 

Kelly Scheller, RD, LD
Video and Slides
  Eating Better
6/18/11
Presenter:
-
Kelly Scheller, RD, LD, University of Minnesota Medical Center, Fairview
     
Defensive Dining: Eating to Maintain Health and Avoid Complications panelists
Video and Slides
  Defensive Dining: Eating to Maintain Health and Avoid Complications
2010 International PH Conference session 6/27/10
Presenters: 
-Glenna Traiger, RN, MSN, University of California Los Angeles, Chair
-Kari Ehringer, PharmD, Accredo
-Lisa Kinder, RD, CNSD, Critical Care Systems
     
Healthy Eating: Tips for the Holiday Season
Voice and Slides
  Healthy Eating: Tips for the Holiday Season
11/23/09
Presenter:

-Myung H. Park, MD, FACC, University of Maryland School of Medicine
     
Woman exercising
Chat Transcript
  Exercise and Nutrition: Ways to a Healthier PH Lifestyle
8/12/08
Presenters:

-Robyn Duarte, PHA Medical Services Associate, Moderator
-Michael Mathier, MD, University of Pittsburgh
-Sidnie Hess, RRT AE-C, Inova Fairfax Hospital
     

Medication & Healthcare Management

     
Voice and slides   Oxygen Access and PH: Getting the Oxygen You Need
8/6/14
Presenter:
-Phillip Porte, National Home Oxygen Patients Association
     

Voice and slides
  When Urgent or Emergent Situations Arise: What Should I Do?
2/8/14
Presenter:

-Wendy Hill, MSN, RN, NP-C, West Los Angeles VA Medical Center
     
Doctor, Doctor – How to Talk to Your Doctor Panelists
Audio
  Doctor, Doctor – How to Talk to Your Doctor
 6/22/12
Presenters:
-Stu Berwick (Chair)
-Louise Durst, RN
-Tara Suplicki
     
Alternative Medicine Panelists
Video
  Alternative Medicine
 6/24/12
Presenters:
-Hector Cajigas, MD, Henry Ford Hospital, Detroit, Mich. (Chair)
-Rana Awdish, MD, Henry Ford Hospital, Detroit, Mich.
-Deb McCollister, RN, BSN, University of Colorado Denver, Aurora, Colo.
     
Emergency Situations and Primary Care Issues Panelists
Video 
  Emergency Situations and Primary Care Issues
 6/23/12 
Presenters:
-Michael McGoon, MD, Mayo Clinic, Rochester, Minn. (Chair)
-Liz Brigham, PH patient, Waynesville, N.C.
-Louise Durst, RN, Mayo Clinic, Rochester, Minn.
-Eric Fenstad, MD, Mayo Clinic, Rochester, Minn.
-Crystal Weber, RN, Duke University Medical Center, Durham, N.C.
     
thumbnail for The Empowered Patient with Deborah Levine, MD
Voice and Slides
  The Empowered Patient: Nurturing Partnerships with your Medical Professionals to Get the Best Care Possible
1/26/11
Presenter:
-Deborah Levine, MD, University of Texas Health Science Center at San Antonio
     
Side Effects of PH Medications
Voice and Slides
  Side Effects of PH Medications
9/28/10
Presenter:

-Karen Fagan, MD, University of South Alabama
     
Emergency Situations and Primary Care Issues panelists
Video
  Emergency Situations and Primary Care Issues
2010 International PH Conference session 6/27/10
Presenters:
 
-Michael McGoon, MD, Mayo Clinic Rochester, Chair
-Louise Durst, RN, Mayo Clinic Rochester
-Namita Sood, MD, FCCP, The Ohio State University
-James White, MD, PhD, University of Rochester
     
Alternative Medicine Panelist
Video
  Alternative Medicine
2010 International PH Conference session 6/27/10
Presenters:
 
-Myung Park, MD, University of Maryland School of Medicine, Chair
-Joshua Breeding, PharmD., BCPS, University of Minnesota Medical Center
-Natalie Kitterman, RN, BSN, CCRP, Intermountain Medical Center
-Helena Purl, RN, BSN, CCRC, Baylor College of Medicine
     
Angie Eldam
Audio
  My Doctor Said I May Need a Lung Transplant
2010 International PH Conference session 6/25/10
Presenters:
-Angie Eldam
-Karen Lindemann
     
Victor Tapson, MD
Video
  Changing to Different PH Medications: Important Things to Know Before, During and After
2010 International PH Conference session 6/26/10
Presenters:

-Victor Tapson, MD, Duke University Medical Center, Chair
-Murali Chakinala, MD, Washington University 
-Kelly Chin, MD, UT Southwestern Medical Center 
-Helena Purl, RN, BSN, CCRC, Baylor College of Medicine
     
Taking an Active Role in Your Healthcare Decisions panelists
Audio

 
Taking an Active Role in Your Healthcare Decisions
2010 International PH Conference session 6/25/10
Presenters:
-Barbara Gamer
-Charlotte McCabe
-Sean Warren
-Doug Taylor
   
Emergency Vehicle
Chat Transcript
  Emergency 101: How to Prepare Yourself and Others for PH Emergencies
8/26/08
Presenters:
-Debbie Levine, MD, University of Texas Health Science Center
-Marilyn Schmidt, RN, ByanLGH Medical Center
     

Coping with PH & Maintaining Quality of Life

     
 Voice and Slides  

Psychosocial Support for PH Kids and Teens
10/2/14
Presenter:
-
Holly Gooding, MD, MS, Boston Children's Hospital

     
Voice and Slides   Surviving Survivor's Guilt
11/13/13
Presenter:
-Ginny Maril, PhD, California Lutheran University
     
Focusing on Emotional Health and Optimizing Quality of Life Panelists
Video
  Focusing on Emotional Health and Optimizing Quality of Life
 6/24/12
Presenters:
-Keith Swetz, MD, Mayo Clinic, Rochester, Minn. (Chair)
-Dan Grinnan, MD, VCU Health System, Richmond, Va.
-Robert Scott, MD, Mayo Clinic Arizona, Phoenix, Ariz.
-Traci Stewart, RN, MSN, University of Iowa, Iowa City, Iowa
     
Communicating to Family and Friends about PH
Audio
  Communicating to Family and Friends about PH
 6/22/12
Presenters:
-Kim Ford (Chair)
-Gwen Brown
-Arlene Schiro, NP 
     
Surviving PH – Lessons from Long-term Survivors Panelists
Audio
  Surviving PH – Lessons from Long-term Survivors
 6/22/12
Presenters:
-Diane Ramirez (Chair)
-Mark Arellano
-Rita Orth, RN
     
 Spirituality
Audio
  Spirituality
 6/22/12
Presenters:
-Stephen L. White, PhD (Chair)
-Adrienne Dern, PHA Senior Vice President 
     
Making PH Sexy Panelists
Audio
  Making PH Sexy
 6/22/12
Presenters:
-Josh Griffis (Chair)
-Melanie Kozak
-Joanne Sperando-Schmidt
     

Audio

 

Having PH – Not Letting PH Have You
 6/22/12
Presenters:
-Cindy Pickles (Chair)
-Pam Carner
-Amanda McKee
 

 

 
Breathing Your Way to Calm
Voice and Slides

 

Breathing Your Way to Calm
3/25/13
Presenter:
-Rana Lee Adawi Awdish, MD, Henry Ford Health System
     
Starting Out the New Year Right - Making a Commitment to You!
Voice and Slides
  Starting Out the New Year Right - Making a Commitment to You!
2/1/13
Presenter:
-Christine Archer-Chicko, MSN, CRNP
     
Understanding the Emotional Impacts of Transplant
Voice and Slides
  Understanding the Emotional Impacts of Transplant
5/30/12
Presenter:
-
Allyson Rupp, LCSW, Vera M. Wall Center for Pulmonary Vascular Diseases Stanford Hospital and Clincis
     
Creativity and Healing Through Blogging
Voice and Slides
  Creativity and Healing Through Blogging
3/8/12
Presenters:
-Leigh McGowan
-Colleen Schnell
     
Maintaining Relationships with Friends and Family After Diagnosis
Voice and Slides
  Maintaining Relationships with Friends and Family After Diagnosis
1/25/12
Presenter:
-
Ginny Maril, MPsy, Texas Woman's University
     
Creative Expression for Wellbeing
Voice and Slides
  Creative Expression for Wellbeing
10/12/11
Presenters:
-Janet Stone, PH Patient and Active Artist
-Megan Mallory, PHA's Associate Director of Publications
     
Telling Your Story: Explaining PH to Friends, Family and Coworkers
Voice and Slides
  Telling Your Story: Explaining PH to Friends, Family and Coworkers
9/1/11
Presenters:
-Amanda Harvey-McKee
-Brit Riggins
     
Cover Slide of Keeping the PH Blues Away




Voice and Slides
  Keeping the PH Blues Away
11/11/10
Presenter:

-Stephen Mathai, MD, MHS, Johns Hopkins University School of Medicine
     
Palliative Care Panelists
Video
  Palliative Care: What Is It and How Can It Help?
2010 International PH Conference session 6/27/10
Presenters:
 

-Keith Swetz, MD, Mayo Clinic, Rochester, Chair
-Paul Fairman, MD, Virginia Commonwealth University
-Janet Pinson, NP, Virginia Commonwealth University

     
Ups and Downs of Living with PAH presenters
Video
  Ups and Downs of Living with PAH
2010 International PH Conference session 6/26/10
Presenters:
-Ronald Oudiz, MD, Harbor-UCLA Medical Center, Chair
-Hubert Chen, MD, MPH, University of California San Francisco
-Deborah McCollister, RN, BSN, University of Colorado Denver
-Darren Taichman, MD, PhD, University of Pennsylvania
     
Power of Choice: Living a Fulfilling Life with a Chronic Illness panelist
Audio
  Power of Choice: Living a Fulfilling Life with a Chronic Illness
2010 International PH Conference session 6/25/10
Presenters:
-Hannah Lahmeyer
-Leslie Polss
-Teresa Wilson
     
When People Just Don't Understand PH panelists
Audio
  When People Just Don't Understand PH
2010 International PH Conference session 6/25/10
Presenters:
-Amanda McKee
-Sheree Rickman
-Marcia Beverly
     
Long-Term Survivors: 10+ Years panelists
Audio
  Long-Term Survivors: 10+ Years 
2010 International PH Conference session 6/25/10
Presenters:
-Marilyn Clements
-Alex Flipse
-Cindy Link
-Jeannette Morrill
     
Conserving Your Energy and Strength panelists
Audio
  Conserving Your Energy and Strength
2010 International PH Conference session 6/25/10
Presenters:
-Mark Arellano, Chair
-April Scheppe
-Rita Orth, RN
     
Spirituality and the Courage to Face a Serious Illness  panelists
Audio
  Spirituality and the Courage to Face a Serious Illness 
2010 International PH Conference session 6/25/10
Presenters:
 
-Dorothy Olson
-Rev. Steve White, PhD
     
Words for Wellbeing
Video and Slides
  Words for Wellbeing 
2010 International PH Conference session 6/25/10
Presenters:
 

-Sylvia Earley, volunteer copy editor for Pathlight
-Megan Mallory, PHA Publications Manager
-Jeannette Morrill, author of "Living with Pulmonary Hypertension: 34 Years and Counting .. Healing the Mind and Body Through Faith"

     
Lifestyle Modifications for Improved Quality of Life
Voice and Slides
  Lifestyle Modifications for Improved Quality of Life
1/27/10
Presenter:

-Janet Pinson, NP, Virginia Commonwealth University
     

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