Recordings

Newly Diagnosed Patients

NEW! The Newly Diagnosed Self-Study: PH Ready

If you or someone close to you has recently been diagnosed with pulmonary hypertension (PH), you probably have a lot of questions and concerns. Or, you may be feeling so overwhelmed by the diagnosis that you aren't sure what kinds of questions to ask. PHA has created The Newly Diagnosed Self-Study: PH Ready, a series of e-courses that serve as a roadmap for newly diagnosed PH patients. It is full of information about treatments, living with PH, insurance, working with your medical team and more. Participants will receive a monthly email highlighting relevant resources for newly diagnosed patients. While PH Ready can be started at any time, the curriculum is intended to begin with the live Newly Diagnosed? What You Need to Know webinar in January and conclude with a live wrap-up webinar in July. Stay tuned for the exact dates!
 
PH Ready is a curriculum intended for newly diagnosed patients. PH Ready, Caregivers is intended as a companion curriculum for caregivers of newly diagnosed patients. PH Ready, Caregivers is coming soon, so check back for updates!

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Here are some recommended recordings to help you begin learning about PH right away.

-indicates PHA 2010 International PH Conference session
 -indicates Minneapolis PHA on the Road session

Insurance
Video and slides		Insurances Issues and Alternative Means for Getting Treatment Covered  6/18/11 Presenters: -Lillian Bauman, LICSW, University of Minnesota Medical Center, Fairview -Kathleen Henderson, Accredo Health Group, Inc. Take the Insurance Self-Test!
Treatment
Video and slides		Initial PAH Treatment: What Are the Choices and Which One is Best for Me?  6/18/11 Presenter: -James R. Flink, MD, St. Paul Lung Clinic  Take the Treatments Self-Test!
Your Care Team
Voice and slides		The Empowered Patient: Nurturing Partnerships with your Medical Professionals to Get the Best Care Possible 1/26/11 Presenter: -Deborah Levine, MD, University of Texas Health Science Center at San Antonio Take the Empowered Patient Self-Test!
Coping
Voice and slides		Lifestyle Modifications for Improved Quality of Life 1/27/10 Presenter: -Janet Pinson, NP, Virginia Commonwealth University
Voice and slides		Telling Your Story: Explaining PH to Friends, Family and Coworkers 9/1/11 Presenters: -Amanda Harvey-McKee -Brit Riggins Take the Coping Self-Test!
Living with PH
Chat transcript		Emergency 101: How to Prepare Yourself and Others for PH Emergencies 8/26/08 Presenters: -Debbie Levine, MD, University of Texas Health Science Center -Marilyn Schmidt, RN, ByanLGH Medical Center
Voice and slides		Understanding PH: The Basics  6/26/10 Presenters: -Dana McGlothlin, MD, University of California San Francisco, Chair -John Newman, MD, Vanderbilt University -Arlene Schiro, MA, CS, NP, Brigham and Women's Hospital
Voice and slides		Newly Diagnosed? What You Need to Know 1/28/13 Presenter: Wendy Hill, MSN, NP-C Take the Living with PH Self-Test!

>>More resources for newly diagnosed patients