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Lobby Locally! Visit Your Members of Congress without Leaving Your State

July 8, 2010 

Diane Ramirez, Cindy Pickles, Sen Kay Hagen, and Janet CecilYour elected officials work for you. Meeting with them to share your story is the most effective way to gain their support for the Tom Lantos PH Research and Education Act and other PH legislation. In August, Members of Congress work from offices in their states, which makes the summer a great time to schedule a visit.

Listen to this recording to learn tips for a successful and effective legislative visit and find out how PHA can help YOU advocate for PH research. Carl Hicks, Charlotte McCabe and Diane Ramirez share how easy and essential advocacy is. PHA’s Washington Representative, Gavin Lindberg, answers questions about PHA’s advocacy agenda.

PHA's 2009-2010 monthly e-Learning Events series was made possible through an unrestricted educational grant from Pfizer Inc.

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Presenter Information

Gavin Lindberg, PHA’s Washington Representative Gavin Lindberg
PHA’s Washington Representative 
Carl Hicks, PHA Board of Trustees, 435 Campaign  member Carl Hicks
PHA Board of Trustees, 435 Campaign member
Charlotte McCabe, Puyallup Washington Support Group Leader, 435 Campaign member Charlotte McCabe
Puyallup Washington Support Group Leader, 435 Campaign member
Diane Ramirez, Piedmont N.C. Support Group Advocacy Co-Chair, 435 Campaign member Diane Ramirez
Piedmont N.C. Support Group Advocacy Co-Chair, 435 Campaign member


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.