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Life After Diagnosis: Staying Active with PH

February 16, 2012

After diagnosis, many patients experience difficulties adjusting to a changing lifestyle. Despite these challenges, patients can find ways to stay active, whether that be through exercising, advocacy or being with friends and family. During this webinar, hear from medical professionals and patients about the different ways you can stay active with PH and how to maintain energy to continue doing the things you love.

 

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Presenter Information

Hannah Lahmeyer

Hannah Lahmeyer

Hannah Lahmeyer is a patient who was diagnosed at the age of 6 in 1993. Today Hannah is 24 years old, an Army wife, and the stay-at-home mother of an adopted two year old girl. She also holds a bachelors degree in Physical Education, played basketball in high school and college, and exercises regularly.

Melanie Kozak

Melanie Kozak

Melanie Gertcher Kozak was officially diagnosed at age 22. Now at 35 years old, she is married and loves volunteering for PHA in her spare time. Melanie helps with the Support Line, runs two Support Groups, and helps moderate Generation Hope in Action. She loves getting involved in fundraisers and advocacy. Her interests include photography, scrapbooking and traveling.

Abby Poms, RRT, Associate in Research, Pulmonary Medicine, Administrative Director, Pulmonary Vascular Disease Center, Duke University Medical Center

Abby Poms, RRT, has over 20 years of experience working in the field of PH. She is the Manager of the Duke University Pulmonary Vascular Disease Center, where she oversees the pulmonary hypertension research programs and the clinical care of patients. She serves on the REVEAL Steering Committee, the largest research effort ever undertaken to study patients with pulmonary arterial hypertension. She has authored several papers in the field of PH, independently developed programs for both patient advocacy and physician awareness, and has served on the PHA Scientific Advisory Board for 10 years.

Rebecca H. Crouch, PT, DPT, CCS, FAACVPR, Director of Pulmonary Rehabilitation and Physical Therapy Services, Duke University Medical Center, Center for Living

Rebecca Crouch, PT, DPT, CCS, FAACVPR, was the Co-Editor of the 3rd and 4th Editions of the AACVPR Guidelines for Pulmonary Rehabilitation. She serves on the Program Committee for the American Thoracic Society's Pulmonary Rehabilitation Assembly. Ms. Crouch is also a cardiopulmonary faculty member on the University of North Carolina at Chapel Hill's Doctoral Programs in Physical Therapy.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.