Support. Friendship. Hope.

Living with a rare disease can sometimes feel lonely. But you are not alone. PHA has a strong network of local support groups and an active online community. By reaching out to people who've been there, you will find fast PHriends who offer support, information and hope for the future. You can connect with the community however you prefer, whether that's on the web, on the phone, or in face-to-face support group meetings.

Walking for a cure at Baltimore Orioles Stadium
Walking for a cure at Baltimore Orioles Stadium



Online Support

  • myPHA
    PHA's online social network for patients and their loved ones is home to hundreds of community members. Joining is free and easy, and will give you access to our most comprehensive resource for online connection and support. 
  • Facebook Groups
    PHA hosts Facebook groups for the following communities:
    • PHA Teens
    • suPer Heroes: Long-Term Living with Pulmonary Hypertension
    • Generation Hope: Young Adults with Pulmonary Hypertension
    • PH Plus: Pulmonary Hypertension and Associated Conditions
    • PHA CTEPH: Chronic Thromboembolic Pulmonary Hypertension
  • Online Support Group Chats
    Attend daily online support group chat meetings.
  • Patient and Caregiver Mentor Program
    Email with an experienced patient or caregiver who can help you find the information and support you're looking for. These mentors are also searchable on myPHA. 
  • RareConnect Community
    Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.

Telephone Support Groups

Patient-to-Patient Support Line

Call the Patient-to-Patient Support Line to ask questions and receive support from other patients who have been there.

Local Support Groups

Find a support group near you and find information on your group's website.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.