Support. Friendship. Hope.
Living with a rare disease can sometimes feel lonely. But you are not alone. PHA has a strong network of local support groups and an active online community. By reaching out to people who've been there, you will find fast PHriends who offer support, information and hope for the future. You can connect with the community however you prefer, whether that's on the web, on the phone, or in face-to-face support group meetings.
- Discussion Board
Share information and support on PHA's popular discussion board.
- Email Groups
Stay in touch with PHers via email in the general community group, special interest groups such as parents or young adults, groups to share tips on getting involved in advocacy and awareness, or networking groups for leaders and medical professionals.
- Online Support Group Chats
Attend daily online support group chat meetings.
- PHA Teens Social Network
Connect with other teen PHers on a social network just for you! PHA Teens is a private network for teens ages 13-18 living with PH.
- Patient and Caregiver Mentor Program
Email with an experienced patient or caregiver who can help you find the information and support you're looking for.
- RareConnect Community
Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.
Telephone Support Groups
Find a support group near you and find information on your group's website.
Ask questions and receive support from other patients who have been there.
Read about other PH community members' journeys with PH and share your own.