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Agenda
Pre-Conference Activities l Skill-Building Workshops | Patient/Family-led Sessions l Support Group Sessions l Medically Led Sessions
Thursday, June 19, 2008
| 3:00 pm – 9:00 pm |
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Conference Registration Open |
| 6:00 pm – 9:00 pm |
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Scientific Sessions Reception (for medical professionals) |
| 6:30 pm – 9:00 pm |
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PH Resource Network Dinner and Meeting (for medical professionals) |
| 7:00 pm – 9:00 pm |
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Informal Patient and Caregiver “Meet and Greet” |
Friday, June 20, 2008
| 7:30 am – 6:00 pm |
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Conference Registration Open |
| 7:00 am – 8:00 am |
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Scientific Sessions Breakfast (for medical professionals) |
| 8:00 am – 7:00 pm |
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Scientific Sessions and Poster Viewing (for medical professionals) |
| 10:30 am – 11:15 am |
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Pre-Conference Networking Sessions |
| 10:30 am – 12:30 pm |
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PHA Support Group Leaders Networking/Luncheon (by invitation only) |
| 12:30 pm – 6:45 pm |
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Kids’ Room Open |
| 1:00 pm – 2:30 pm |
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Conference Opening and Keynote Address by Carl Hicks, PHA's Board Chair-Elect |
| 3:00 pm – 4:00 pm |
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Patient and Family-led Breakout Sessions |
| 4:15 pm – 5:15 pm |
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Support Group Meetings |
| 5:30 pm – 6:45 pm |
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International Reception (for guests from other nations) |
| 5:30 pm – 6:30 pm |
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Skill-Building Sessions (led by PHA staff) |
| 7:00 pm – 9:00 pm |
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“Journey of Hope and Discovery” Dinner Featuring Vallerie McLaughlin, M.D. |
Saturday, June 21, 2008
| 7:30 am – 12:00 pm |
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Conference Registration Open |
| 7:30 am – 8:45 am |
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“Around the World” Breakfast |
| 8:45 am – 5:00 pm |
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Kids’ Room Open |
| 9:00 am – 12:30 pm |
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Medically Led Breakout Sessions |
| 11:30 am – 12:30 pm |
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International Meeting |
| 12:45 pm – 2:15 pm |
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“Journeys” Luncheon |
| 2:30 pm – 3:30 pm |
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Medically Led Breakout Sessions |
| 3:45 pm – 4:45 pm |
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Support Group Meetings |
| 5:00 pm – 6:15 pm |
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PHA Fashion Show |
| 7:00 pm – 9:00 pm |
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“Progress of the Past, Promise of the Future” Dinner Featuring Michael McGoon, M.D. (also Dine with a Doc) |
Sunday, June 22, 2008
| 7:30 am – 8:45 am |
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“Next Generation of PHA Leaders” Breakfast |
| 7:30 am – 8:45 am |
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Helpline Volunteers Training and Breakfast (by invitation only) |
| 8:45 am – 11:30 am |
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Kids’ Room Open |
| 9:00 am – 11:15 am |
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Medically Led Breakout Sessions |
| 11:15 am |
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Conference Ends |
Session times and topics are subject to change.
 To make the most of your time in Houston, we’ve planned a full line-up of pre-Conference activities. If you are eager to meet other patients and caregivers from your area or message board and listserv friends from around the world, don’t miss the Friday morning networking sessions, which include:
- Meet PHA’s Board of Trustees
- Online Community Meet-up: Message boards, Listservs & Chats Participants
- Pediatric Patients and Parents
- And Several Regional Networking Sessions.
There will also be an informal Patient and Caregiver “Meet & Greet” on Thursday evening for those attendees who arrive in Houston early.
On Friday afternoon, join the PHA staff for skill-building workshops that cover:
Stop by a session, pick up some new tips and share tactics that have worked for you.
PHA’s Conference is packed with valuable medical information, but an equally important aspect is the opportunity to connect with others and share tips on living PHenomenal lives while managing PH. The patient/family-led sessions provide the perfect occasion for this exchange.
Topics for the 2008 patient/family-led Sessions include:
PHA has a long history of encouraging the growth of local support group meetings as a means for ending isolation and building a community of hope. The support group sessions at Conference expand on this tradition by allowing you to meet with patients and caregivers from around the world to discuss PH-related issues that are pertinent to your personal situation.
Topics for the 2008 support group sessions include:
- Newly Diagnosed
- Long Term Survivors
- Teen PHers (12-18 years old)
- Young Adult PHers (18-30 years old)
- Parents of PH Children Under 21
- Parents/Siblings of PHers over 21
- Caregivers (Men & Women)
- My Parent/Sibling has PH – For Kids Under 21
- PHers with Auto Immune Issues
- Familial PH
- PHers on Flolan
- PHers on Remodulin
- PHers on Inhaled Therapies
- PHers on Oral Meds
- PHers Transitioning One Med to Another
- Mild PH (Class I and II) AND Those with Associated Conditions (COPD, Emphysema, ILD, IPF, PTE, etc.)
- Spanish-Speaking Support Group
 PHA Conferences are known for their comprehensive and valuable programming and this year is no exception. With 40 medically led sessions being offered in 2008, PHA will bring you face-to-face with more PH experts than ever before.
Need help deciding which medically led sessions to attend at Conference? Ask the experts – Dr. Michael Krowka, Chair of the Medical Sessions Committee, and Rebekah Macfie, PHA Medical Services Associate, will be hosting an online chat on Wednesday, May 7 at 2pm EST.
9:00 am – 10:00 am
10:15 am – 11:15 am
11:30 am – 12:30 pm
2:30 pm – 3:30 pm
9:00 am – 10:00 am
10:15 am – 11:15 am
2008 Medical Sessions Committee
Michael Krowka, M.D. (Chair)
Cathy Anderson-Severson, R.N., BSN
Jeffrey Edelman, M.D.
Sean Gaine, M.D.
Traci Housten, R.N., M.S.
Debbie Levine, M.D.
Michael Mathier, M.D.
Joseph Parambil, M.D.
Tomas Pulido, M.D.
Julio Sandoval, M.D.
Roxana Sulica, M.D.
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