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Conference Presentations & Recordings
Were you unable to attend PHA's Conference in June? Were you there but want to hear sessions you missed? Here is your chance to learn more about treatments, research and living with PH! Audio recordings and educational material, such as handouts and power point slides, from the majority of Conference sessions, including the keynote speeches, are now available for your reference.
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Conference Opening Ceremony
Audio recording
Carl Hicks - watch and scroll through slideshow as you listen to his speech as part of the recording above
View Picture Tribute to Tom Lantos
View Keynote Slideshow
“Journey of Hope and Discovery” Dinner
Audio recording
Vallerie V. McLaughlin, M.D., FACC, FAHA, FCCP - - watch and scroll through slideshow as you listen to her speech as part of the recording above
View Speech Slideshow
"Around the World" Breakfast
Audio recording
"Journeys" Luncheon
Audio recording
“Progress of the Past, Promise of the Future” Dinner
Audio recording
Michael D. McGoon, M.D. - watch and scroll through slideshow as you listen to his speech as part of the recording above
View presentation
"Next Generation of PHA Leaders" Breakfast
Audio recording
- Communicating with Friends & Family
Presenters:
Thomas Albertson
Judy Fox
Laurie Johansen
Natalie Kitterman, RN, BSN, CCRP
Meg Horne
Session description
Handout
Audio recording
- Oxygen Delivery Systems & Traveling with PH
Presenters:
Jane Cooper
Les Estes, Lincare
Ellen Harris
Misty Hays
Session description
Handout
Audio recording
- Talking with Medical Professionals
Presenters:
Cathy Anderson-Severson, RN, BSN
Carl Hicks Jr.
Doug Taylor
Session description
Handout
Audio recording
- Working with PH: Can it be Done?
Presenters:
Alex Filpse
Sally Maddox
Leslie Polss
Linda Scatlin
Session description
Audio recording
- Spirituality and PH
Presenters:
Cindy Haan
Diane Ramirez
Rev. Stephen L. White, PhD
Session description
Audio recording
- Conserving Your Energy
Presenters:
Brittany Evans
Annette Markin
Traci Stewart, RN, MSN
Session description
Audio recording
- Being Your Own Advocate
Presenters:
Cindy Pickles
Helena Purl, RN, BSN
Tonya Robertson
Session description
Audio recording
- Parenting a Child with PH (ages 0 – 11)
Presenters:
Christina Doak
Christine & Scott Hetrick
Marina & Steve Van Wormer
Session description
Handout
Audio recording
Parenting a Child with PH (ages 12 & up)
Presenters:
Laurie Heaton
Laurie Jeter
Linda Mercuri
Bill O’Donnell
Sunnie Scott
Session description
Audio recording
- Considering Transplant
Presenters:
Shirley Craig
Angie Eldam
Kirsten Larson
Laura Strapp
Session description
Handout
Audio recording
- What about the Caregivers?
Presenters:
Harold Cooper
Larry Fox
Joe Haan
Norma Hetrick
Rick Vandiver
Session description
Handout 1
Handout 2
- Stories of Long-term Survival
Presenters:
Diane Adkins
Melanie Gertcher
Beverly Lipmyer
Jeannette Morrill
Debbie Wilson
Session description
Handout
Audio recording
- Words for Wellness: Creative Expression as Medical Therapy
Presenters:
Christine Dickler, PHA Publications Manager
Shirley Craig, Past Editor of Pathlight
Leslie Polss, PH Cartoonist
Session description
Handout
Audio recording
- Walk, Sing or Swing for a Cure in Your Hometown!
Presenters:
Deirdre Farrell, PHA Special Events Coordinator
Brittany Evans, East Cobb Concert for a Cure, Tenn.
Jeannette Morrill, Swinging for a Cure Golf Tournament, Maine
Cindy Wangerud, PHun Walk for a Cure, Minn.
Tracy Zanitsch, PHun Walk for a Cure, Minn.
Session description
Audio recording
- PHA Support Groups, Helpline & More: Finding Other Patients During (and After!) Conference
Presenters:
Debbie Castro, PHA Director of Volunteer Services
Gail Bucci, Southwest Florida Support Group
Ellen Harris, Northern Virginia/Fairfax Support Group
Joanne Sperando-Schmidt, Long Island, N.Y. Support Group
Session description
Audio recording
- From Proclamation to Legislation: An Advocacy Skill-Building Workshop
Presenters:
Katie Kroner, PHA Director of Advocacy & Awareness
Gavin Lindberg, PHA Lobbyist
Anne Sperando, 435 Campaign Member
Susan Temple , 435 Campaign Member
Session description
Handout
Audio recording
- Media Matters!
Presenters:
Nathan Barker, PHA Advocacy & Awareness Associate
Diane Cowen, Health Section Editor for the Houston Chronicle
Michael Roth, BMC Communications Group, New York
Matacha Saul, Stibbs & Co., Texas
Session description
Handout
Audio recording
9:00 am – 10:00 am
- Understanding Pulmonary Hypertension: The Basics
Presenters:
Sean P. Gaine, MD, PhD; Mater Misericordiae Univ. Hospital, Dublin, Ireland
John T. Berger, MD; Children’s National Medical Center, Washington, D.C.
Paul Fairman, MD; Virginia Commonwealth Univ. Health System
Stephen C. Mathai, MD, MHS; Johns Hopkins Univ. Medical Center, Md.
Ivan M. Robbins, MD; Vanderbilt Univ. Medical Center, Tenn.
Arlene Schiro, RN, MA, CS, ACNP; Massachusetts General Hospital
Session description
Audio recording
- PDE-5 Inhibition (Revatio) & Nitric Oxide
Presenters:
Marc Pritzker, MD; Univ. of Minnesota
David Langleben, MD; Jewish General Hospital, Montreal, Canada
Shelley Shapiro, MD; UCLA School of Medicine
Janet Pinson, NP; Virginia Commonwealth Univ. Health System
Session description
Handout
Audio recording
- The Good, The Bad, The Ugly: Anticoagulation & Drug-Drug Interaction
Presenters:
Michael J. Krowka, MD; Mayo Clinic, Minn.
David B. Badesch, MD; Univ. of Colorado Health Sciences Center
Steven Kawut, MD, MS; Columbia Univ. Medical Center, N.Y.
Lynn Oveson, RN, MN, ANP; Oregon Health and Science Univ.
Session description
Audio recording
- Treadmills, Bicycles & PH: Questions About Exercise
Presenters:
Michael Mathier, MD; Univ. of Pittsburgh Medical Center, Penn.
Sidnie Hess, RRT, ACSM; INOVA Fairfax Hospital, Va.
Ronald J. Oudiz, MD; Harbor-UCLA Medical Center
Harold Palevsky, MD; Univ. of Pennsylvania Medical Center
Robert Schilz, DO, PhD; Case Western Univ. School of Medicine, Ohio
Session description
Handout
Audio recording
- What to Do When Medical Therapy is Not Working: Lung Transplantation, UNOS & Other Surgical Treatments
Presenters:
Jeffrey D. Edelman, MD; Univ. of Washington Medical Center
Patricia Jones, RN, CCTC; Univ. of Texas Health Science Center
Deborah J. Levine, MD; Univ. of Texas Health Science Center
Sean M. Studer, MD, MS; Univ. of Pittsburgh Medical Center, Penn.
Session description
Audio recording
- Entendiendo la hipertensión pulmonar: Lo básico
Presentadores:
Julio Sandoval, MD; National Institute of Cardiology, Mexico City, Mexico
Javier Aduen, MD; Mayo Clinic, Fla.
Hernán Grenet, PhD, Univ. of Alabama
Francisco J. Soto, MD, MS; Medical College of Wisconsin
Session description
Audio recording
- Congenital Heart Disease and PH
Presenters:
Jamil Aboulhosn, MD; David Geffen School of Medicine at UCLA
Julianne Mueller, RN, BSN, CCTC; Ohio State Univ.
Delphine Yung, MD; Seattle Children’s Hospital, Wash.
Session description
Handout 1
Handout 2
Audio recording
10:15 am – 11:15 am
New Frontiers: Combination Therapy, Transition to Oral Therapy
Presenters:
David Langleben, MD; Jewish General Hospital, Montreal, Canada
Raymond Benza, MD; Univ. of Alabama
Monica Colvin-Adams, MD; Univ. of Minnesota
Natalie Kitterman, RN, BSN, CCRP; Intermountain Medical Center, Utah
Session description
Audio recording
- Why Did I Get PH? The New Profile of Pulmonary Hypertension
Presenters:
Michael Mathier, MD; Univ. of Pittsburgh Medical Center, Penn.
Steven Kawut, MD, MS; Columbia Univ. Medical Center, N.Y.
Sandra Lombardi, RN; UCSD Medical Center
Jeffrey S. Sager, MD, MSc; Sansum Clinic, Calif.
R. James White, MD, PhD; Univ. of Rochester, N.Y.
Session description
Handout
Audio recording
- Epoprostenol (Flolan)/Treprostinil (Remodulin): New Concepts in Dosing Delivery; Prevention &
Management of Catheter-related Infections
Presenters:
Vallerie V. McLaughlin, MD; Univ. of Michigan Health System
Christine Archer Chicko, MSN, CRNP; Penn-Presbyterian Medical Center
Todd M. Bull, MD; Univ. of Colorado Health Sciences Center
Aimee Doran, CPNP; Denver Children’s Hospital, Colo.
Victor Tapson, MD; Duke Univ. Medical Center, N.C.
Session description
Audio recording
- PAH and Low Oxygen Levels: Let’s Talk About Sleep Apnea, COPD & ILD
Presenters:
Roxana Sulica, MD; Beth Israel Medical Center, N.Y.
Murali Chakinala, MD; Washington Univ., Mo.
Stephanie J. Harris, RN, BSN; Univ. of Washington Medical Center
Omar A. Minai, MD; Cleveland Clinic, Ohio
Ioana Preston, MD; Tufts Medical Center, Mass.
Session description
Audio recording
- Familial/Genetic PAH
Presenters:
Greg Elliott, MD; Intermountain Medical Center, Utah
Wendy Chung, MD, PhD; Columbia Univ. Medical Center , N.Y.
James E. Loyd, MD; Vanderbilt Univ. Medical Center, Tenn.
John H. Newman, MD; Vanderbilt Univ. Medical Center, Tenn.
Lisa Wheeler, MT; Vanderbilt Univ. Medical Center, Tenn.
Session description
Handout
Audio recording
- The Latest in PH Therapies for Children – From Medicines to Lung Transplant
Presenters:
George B. Mallory, Jr, MD; Texas Children’s Hospital
Daniela Brady, RN; Columbia Univ. Medical Center, N.Y.
Dunbar Ivy, MD; Univ. of Colorado Health Sciences Center
Felix Shardonofsky, MD; Univ. of Texas Southwestern Medical Center
Session description
Handout
Audio recording
- Cuidado, de los Pacientes con Hipertension Pulmonar. El Punto de Vista de Enfermeria
Session description
Audio recording
11:30 am – 12:30 pm
- Emergency Situations
Presenters:
Deborah J. Levine, MD; Univ. of Texas Health Science Center
Louise Durst, RN; Mayo Clinic, Minn.
Nicholas S. Hill, MD; Tufts Medical Center, Mass.
John W. Swisher, MD, PhD; Doctors Hospital of Sarasota, Fla.
Session description
Audio recording
- Prostanoids (Flolan, Remodulin, Ventavis)
Presenters:
Jeffrey D. Edelman, MD; Univ. of Washington Medical Center
Ronald J. Oudiz, MD; Harbor-UCLA Medical Center
Darren Taichman, MD, PhD; Penn-Presbyterian Medical Center
Johanna Van Dijk, RN; UCSD Medical Center
Session description
Audio recording
- Nutrition, Diet & Alternative Medicine
Presenters:
Joseph Parambil, MD; Cleveland Clinic, Ohio
Jason M. Golbin, DO; Mayo Clinic, Minn.
Jeanette G. Hall, EdD, RD/LD; Endocrinology Associates, Texas
Jessica Lazar, MPA, PA-C; Allegheny General Hospital, Penn.
Session description
Audio recording
- How is PH in Scleroderma and Connective Tissue Disease Different?
Presenters:
Charles D. Burger, MD; Mayo Clinic, Fla.
Joy Beckmann, RN, MSN; Harbor-UCLA Medical Center
Kenneth Calamia, MD; Mayo Clinic , Fla.
Session description
Handout
Audio recording
- Thrombolic Disease & PH – The Spectrum of Therapies
Presenters:
Victor Tapson, MD; Duke Univ. Medical Center, N.C.
William R. Auger, MD; UCSD Medical Center
Maureen Cavanagh, RN, BSN; UCSD Medical Center
Peter F. Fedullo, MD; UCSD Medical Center
Karen L. Swanson, DO; Mayo Clinic , Minn.
Session description
Audio recording
- Medicare Prescription Drug Coverage & Finding Help with Insurance Co-Payments
Presenters:
Traci Housten, RN, MSN; Johns Hopkins Univ. Medical Center, Md.
Doyle Hull; Caring Voice Coalition, Va.
Session description
Handout
Audio recording
2:30 pm – 3:30 pm
Basic Research in PH: The Door to New Therapies
Presenters:
Marlene Rabinovitch, MD; Stanford Univ. Medical Center, Calif.
Garvan C. Kane, MD, PhD; Mayo Clinic, Minn.
Karen Fagan, MD; Univ. of South Alabama
Sean Gaine, MD, PhD; Mater Misericordiae Univ. Hospital, Ireland
Session description
Audio recording
- Changing to Different PH Medications: Important Things to Know Before, During & After
Presenters:
David B. Badesch, MD; Univ. of Colorado Health Sciences Center
Murali Chakinala, MD; Washington Univ., Mo.
Greg Elliott, MD; Intermountain Medical Center, Utah
Robert P. Frantz, MD; Mayo Clinic, Minn.
Rhonda Groebner, ANP; Minneapolis Heart Institute, Minn.
Session description
Handout
Audio recording
- As Goes the Liver, So Goes the Lung: Liver Disease & PH
Presenters:
Karen L. Swanson, DO; Mayo Clinic, Minn.
Raed A. Dweik, MD; Cleveland Clinic, Ohio
Steven Kawut, MD, MS; Columbia Univ. Medical Center, N.Y.
Michael J. Krowka, MD; Mayo Clinic, Minn.
Joan Zhang, RN; Univ. of Pittsburgh Medical Center, Penn.
Session description
Audio recording
- Young Women: Issues of PAH including Pregnancy
Presenters:
Deborah Levine, MD; Univ. of Texas Health Science Center
Dunbar Ivy, MD; Univ. of Colorado Health Sciences Center
Martha Kingman, FNP-C; Univ. of Texas Southwestern Medical Center
Session description
Audio recording
- Would You Like to Be in a Clinical Trial? What You Need to Know as a Patient!
Presenters:
Vallerie V. McLaughlin, MD; Univ. of Michigan Health System
Richard N. Channick, MD; UCSD Medical Center
Raquel Clayton, BSN, RN; Univ. of Michigan Health System
Constance Jennings, MD; Cleveland Clinic, Ohio
Session description
Audio recording
- Vista General de Terapias Medicas en el Tratamiento de Hipertensión Pulmonar
Presentadores:
Tomás Pulido, MD; National Institute of Cardiology, Mexico City, Mexico
Javier Aduen, MD; Mayo Clinic, Fla.
Fernando Torres, MD; Univ. of Texas Southwestern Medical Center
Felix Shardonofsky, MD; Univ. of Texas Southwestern Medical Center
Session description
Audio recording
- Ask the Pediatrician – Parents Only (Kids 0-11 years)
Presenters:
John T. Berger, MD; Children’s National Medical Center, Washington, D.C.
Daniela Brady, RN; Columbia Univ. Medical Center, N.Y.
Janette T. Reyes, RN, BScN, MN, ACNP; The Hospital for Sick Children, Toronto, Canada
Delphine Yung, MD; Seattle Children’s Hospital, Wash.
Session description
Audio recording
9:00 am – 10:00 am
- Endothelin Antagonists (Bosentan [Tracleer], Ambrisentan [Letairis], Sitaxsentan [Thelin])
Presenters:
David B. Badesch, MD; Univ. of Colorado Health Sciences Center
Deb McCollister, RN; Univ. of Colorado Health Sciences Center
Michael D. McGoon, MD; Mayo Clinic, Minn.
Ivan M. Robbins, MD; Vanderbilt Univ., Tenn.
Session description
Handout
Audio recording
- An Overview of Medical Therapies for PAH
Presenters:
Richard N. Channick, MD; UCSD Medical Center
Kelly Chin, MD; Univ. of Texas Southwestern Medical Center
Mardi Gromberg, MD; Univ. of Chicago, Ill.
Juliana Liu, NP; Stanford Univ. Medical Center, Calif.
Session description
Audio recording
- Blood Disorders & PAH: Sickle Cells, Spleens & Platelets
Presenters:
Roxana Sulica, MD; Beth Israel Medical Center, N.Y.
Harrison W. Farber, MD; Boston Univ. School of Medicine, Mass.
Mark T. Gladwin, MD; National Institutes of Health, Md.
Roberto F. Machado, MD; National Institutes of Health, Md.
Kamal Mubarak, MD; Univ. of Florida
Session description
Audio recording
- Cirugía y otras Opciones de Intervención y Nuevas Direcciones en el Tratamiento de la Hipertensión Pulmonar
Presentadores:
Javier Aduen, MD; Mayo Clinic, Fla.
Francisco G. Alvarez, MD; Mayo Clinic , Fla.
Jesus Diaz, MD; Mayo Clinic, Fla.
Julio Sandoval, MD; National Institute of Cardiology, Mexico City, Mexico
Fernando Torres, MD; Univ. of Texas Southwestern Medical Center
Session description
Audio recording
- Ask the Pediatrician – Kids Only
Presenters:
Brian D. Hanna, MD, PhD; Children’s Hospital of Philadelphia, Penn.
Amiee Doran, CPNP; Denver Children’s Hospital, Colo.
Kim Patterson, MSN, CPNP; Children’s Hospital of Philadelphia, Penn.
Session description
Handout
10:15 am – 11:15 am
- What Does REVEAL Reveal?
Presenters:
Michael D. McGoon, MD; Mayo Clinic, Minn.
Raymond Benza, MD; Univ. of Alabama
Greg Elliott, MD; Intermountain Medical Center, Utah
Session description
Handout
Audio recording
- On the Horizon of Tomorrow: An Update of Investigational Agents
Presenters:
Adaani Frost, MD; Baylor College of Medicine, Texas
Zeenat Safdar, MD; Baylor College of Medicine, Texas
Traci Stewart, RN, MSN; Univ. of Iowa
Fernando Torres, MD; Univ. of Texas Southwestern Medical Center
Session description
Handout
Audio recording
- Primary Care Issues: Can I Have Elective Surgery, When Should I See a PH Specialist?
Presenters:
Myung H. Park, MD; Univ. of Maryland School of Medicine
Mardi Gomberg, MD; Univ. of Chicago, Ill.
Srinivas Murali, MD; Allegheny General Hospital, Penn.
Helena Purl, RN; Baylor College of Medicine, Texas
Session description
Handout
Audio recording
- Question the Experts!
Presenters:
Cathy J. Anderson-Severson, RN, BSN; Mayo Clinic, Minn.
Richard N. Channick, MD; UCSD Medical Center
Raed A. Dweik, MD; Cleveland Clinic, Ohio
Michael J. Krowka, MD; Mayo Clinic, Minn.
Roxana Sulica, MD; Beth Israel Medical Center, N.Y.
Session description
Audio recording
- The ABC’s of BNP (and Other PH Test Results)
Presenters:
Joseph Parambil, MD; Cleveland Clinic, Ohio
Hector R. Cajigas, MD; Henry Ford Hospital, Mich.
Laurie Lawler, RN; Massachusetts General Hospital
Omar A. Minai, MD; Cleveland Clinic, Ohio
Aaron B. Waxman, MD, PhD; Massachusetts General Hospital
Session description
Audio recording
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