Patient/Family-led Sessions

Communicating with Family & Friends | Oxygen Delivery Systems & Traveling with PH | Spirituality & PH l Talking with Medical Professionals | Working with PH: Can it be Done? | Conserving Your Energy | Being Your Own Advocate | Parenting a Child with PH (ages 0-11) | Parenting a Child with PH (ages 12 & up) | Considering Transplant? | Stories of Long-Term Survival | What about the Caregivers?

Patient/Family-led Sessions
3:00 pm – 4:00 pm

Communicating with Family & Friends
Meeting Room 330

Presenters:
   Thomas Albertson  
   Judy Fox  
   Laurie Johansen
   Natalie Kitterman, RN, BSN, CCRP
   Meg Horne  

Panelists will discuss how to be a good communicator – specifically how to help loved ones understand your illness and needs, and learning to say “no” effectively.

Oxygen Delivery Systems & Traveling with PH
Meeting Room 338

Presenters:
   Jane Cooper
   Les Estes, Lincare
   Ellen Harris
   Misty Hays
  
This panel will discuss the various O2 delivery systems and the current regulation regarding traveling with oxygen. Other PH travel concerns will also be addressed.

Spirituality & PH
Meeting Room 334 A

Presenters:
   Cindy Haan
   Diane Ramirez
   Rev. Stephen L. White, PhD

Learn how PH patients and families manage and cope with their illness through faith and deepened self-understanding.

Talking with Medical Professionals
Meeting Room 335 A

Presenters:
   Cathy Anderson-Severson, RN, BSN
   Carl Hicks Jr.
   Doug Taylor

The average time for a physician office visit is eight minutes. Let’s discus how best to prepare for visits with your doctor and when to consider seeking a second opinion.

Working with PH: Can it be Done?
Meeting Room 337 A

Presenters:
   Alex Filpse
   Sally Maddox
   Leslie Polss
   Linda Catlin

Does a PH diagnosis mean it’s time to throw in the time clock? Working patients will share their tactics for managing a job and their PH.

Conserving Your Energy
Meeting Room 335 B

Presenters:
   Brittany Evans
   Annette Markin
   Traci Stewart, RN, MSN

This session focuses on learning how to prioritize your daily needs to conserve energy and other tips for minimizing stress.

Being Your Own Advocate
Meeting Room 344 B

Presenters:
   Cindy Pickles
   Helena Purl, RN, BSN
   Tonya Robertson

Panelists will lead a discussion on how one can learn the most about PH and the importance of doing your research, educating others, involving yourself in the legislative process – making your voice heard!

Parenting a Child with PH (ages 0-11)
Meeting Room 333

Presenters:
   Christina Doak
   Christine & Scott Hetrick
   Marina & Steve Van Wormer

Parents of children with PH (ages 0-11) share ideas on the many unique challenges they face.

Parenting a Child with PH (ages 12 & up)
Meeting Room 332

Presenters:
   Laurie Heaton
   Laurie Jeter
   Linda Mercuri
   Bill O’Donnell
   Sunnie Scott

Parents of children with PH (ages 12 & up) share ideas on the many unique challenges they face.

Considering Transplant?
Meeting Room 327

Presenters:
   Shirley Craig
   Angie Eldam
   Kirsten Larson
   Laura Strapp

Thinking about issues related to the possibility of transplant? Talk to those who have undergone or are preparing for transplant.

Stories of Long-Term Survival
Meeting Room 328

Presenters:
   Diane Adkins
   Melanie Gertcher
   Beverly Lipmyer
   Jeannette Morrill
   Debbie Wilson

This session features a discussion with patients who have lived with PH for many years. They will share their secrets for managing their disease and living a full life.

What about the Caregivers?
Meeting Room 335 C

Presenters:
   Harold Cooper
   Larry Fox
   Joe Haan
   Norma Hetrick
   Rick Vandiver
  
A panel of caregivers will discuss how they have learned to manage the multiple priorities associated with their loved one’s illness, while still taking care of themselves.