Medically Led Sessions
Saturday, June 18, and Sunday, June 19.
The Medically Led Sessions are concurrent educational sessions for patients and family members presented by panels of expert medical professionals. All sessions will provide the opportunity for open interaction and discussion. These sessions will take place throughout the day on Saturday, June 18 and Sunday, June 19.
Basics of PH, Treatment and Tests
This session will explain heart and lung function and what happens to these systems in pulmonary hypertension patients. This general overview of the different types of pulmonary hypertension and management will provide you with the educational foundation you will need to focus your attention on other sessions. *also available in Spanish
Connective Tissue Disease and PAH
The panel will review the characteristics of connective tissue disease and pulmonary arterial hypertension, focusing on the multiple ways connective tissue disease causes PH and the impact on other organs, such as the heart, kidneys and muscles.
Drug Development, Treatments on the Horizon and Stem Cells
During this session, the panel will provide an overview of how drugs are developed, how newer drugs may impact drug selection as well as an overview of various active and recently completed clinical trials. The panel will also discuss stem cells as a potential novel therapy for PAH, particularly for patients with advanced disease who are unresponsive to currently available therapies. *also available in Spanish
Exercise and Rehabilitation Programs
During this session, the speakers will cover why and how patients may benefit from pulmonary rehabilitation and exercise. Speakers will discuss how research about exercise and pulmonary rehabilitation has changed over the years, and how to incorporate these tips into your lifestyle.
Goal-Directed Combination Therapy
Treatment options for pulmonary hypertension have dramatically expanded with the availability of multiple medications. This session will focus on the rationale for combination therapy, including how and when PH specialists may choose to adjust or switch treatments, and review results of studies on combination therapy.
Prostacylins (epoprostenol and treprostinil) are among the most potent and effective therapies for patients with advanced pulmonary arterial hypertension. However, there are unique challenges and potential complications of these therapies, mainly related to their unique delivery systems. This session will review data on currently available infused prostacylins.
This session will discuss how inhaled therapies are used to treat some patients with pulmonary arterial hypertension. An overview of the two FDA-approved inhaled prostacyclins will be provided, along with a discussion of appropriate patient selection and management of side effects.
Insurance and Treatment Access
In this session, panelists will discuss insurance and treatment access issues that are specific to PH patients and PH medications. Tips and tricks for dealing with common problems will also be discussed.
Intimacy Issues – Women
This session will provide a comfortable setting for women to communicate about intimacy issues. Panelists will address concerns regarding the effect of this chronic illness on intimacy and relationships, and how to improve quality of life.
Men with PH
This session will provide a comfortable setting for males to communicate about intimacy issues. Panelists will address concerns regarding the effect of this chronic illness on intimacy in relationships, and how to improve quality of life.
Changing PH Medications
In this session, presenters will discuss the process and considerations for changing PH medication types or delivery methods.
Coping with Chronic Illness
Caregivers and patients can experience difficulty coping, compassion fatigue, burnout and survivor's guilt. It is important to increase awareness of potential characteristics that can develop when coping with illness. Strategies to cope with chronic illness, compassion fatigue and survivor's guilt will be discussed.
Nutrition and Diuretics
Panelists will discuss how a patient's diet can improve living with pulmonary hypertension. Attendees will learn how to optimize the body's water balance with good salt and water habits, learn the importance of maintaining a proper diet and a healthy weight, and learn tricks to better deal with the side effects of water pills.
This session will review phosphodiesterase inhibitors, endothelin receptor antagonists, soluble guanylate cyclase stimulators and oral prostacyclins. Panelists will review these drugs'™ roles in the treatment of PAH and how novel oral agents are being developed that will further advance the field and hopefully improve long-term outcomes in patients who suffer from PAH.
Pediatrics (infant - 11)
The goal of this session is to discuss the challenges facing infants and children up to age 11 and their families. Specific focus will be on how medications approved for adults may be used "off-label" in children.
Pediatrics (12 - 18)
The goal of this session is to discuss the special needs of 12-18 year olds with pulmonary hypertension. Specific focus will be placed on transitioning the pediatric patient to an adult pulmonary hypertension specialist and the challenges associated with this transition.
PH and Another Condition
Panelists will discuss how living with PH may be affected by other chronic illnesses that a patient may develop throughout his or her lifetime, such as cancer or diabetes.
Preparing for Emergency Situations
This session will address situations when pulmonary hypertension becomes an emergency. The focus will be on who to call, what immediate measure to take, and where to go.
Preparing for Travel and Oxygen Use
This session will explain how to prepare for travel in order to have a safe and uneventful trip. Panelists will also discuss oxygen supplementation.
Surgery and Anesthesia in PH Patients
This session will discuss preoperative evaluation and risks for pulmonary hypertension patients undergoing surgery, including the effects of anesthesia, type of operation and ICU care.
Transplantation for PH
This session will provide an overview of lung transplant in the setting of pulmonary hypertension. The updated lung allocation scoring system for transplant will be discussed.
Who Group II – Left Heart Disease
Panelists will provide an overview of pulmonary hypertension in the setting of left heart disease and the implications that diastolic dysfunction could have on the patient.
WHO Group IV – CTEPH
Unlike most other types of pulmonary hypertension, chronic thromboembolic pulmonary hypertension (CTEPH) can be cured with surgery (pulmonary thromboendarterectomy), although very few centers perform this procedure. This session will review diagnosis and treatment options for CTEPH patients.
Diagnosing PH – Is Your PH Diagnosed Correctly?
This session will review the standard testing and methods used to diagnose and manage patients with pulmonary hypertension. Tests such as echocardiogram, cardiac catheterization, exercise tests and other lab and imaging modalities will be highlighted.
Advanced Directives and the Role of Palliative Care
In this session, both the difficulty and the importance of having conversations about end-of-life care are recognized. Speakers will provide resources to help participants continue these conversations with their families and healthcare providers.
Adult Congenital Heart Disease, Blood Disorders and Liver Disease with PH
This session will focus on the various forms of congenital heart disease, blood disorders and liver disease in the setting of pulmonary hypertension. Diagnostic and therapeutic methods will be discussed.
Spanish-language programming will also be available at the Conference.