Conference Opening: Celebrating 25 Years of PHA
Friday, June 17, 1:00 - 2:00 p.m.
The Conference Opening gathers all Conference attendees for the official kick-off to the days of learning, sharing and connecting that will follow. A key element of the Conference Opening is the accompanying Conference Opening Video, which energizes attendees to make the most of their Conference weekend. For 25 years, PHA has brought together patients, caregivers, medical professionals and industry in a strong and vibrant community. To honor the past 25 years and to launch into the next, PHA will gather videos from the community to create a video montage celebrating PHA’s 25th anniversary and giving our more than 16,000 members and supporters the opportunity to describe what PHA means to them. PHA will ask our support groups, patient and caregiver networks, PH Care Centers, and Corporate Committee members, among others, to send short videos to be included in a firecracker opening video for PHA’s 2016 25th anniversary Conference.
Conference Opening Dinner: 25 Years of PH Medicine and Its Future
Friday Dinner, June 17, 7:00 - 8:30 p.m.
The Conference opening dinner on Friday evening is the first meal that the PHA community shares together. Patients, caregivers and medical professionals connect, and old friends renew acquaintances, forming bonds and friendships that will last throughout Conference and beyond. During the dinner, a member of PHA’s Community of Hope will take us on a journey of PHA’s first 25 years and provide a vision for the future. The Research Awards will be presented, and the Award of Excellence in PAH Care recipient will be honored at this dinner.
Network with a Medical Professional: 25 Years without Barriers
Saturday Breakfast, June 18, 8:00 - 9:00 a.m.
This Saturday morning breakfast gives patients and caregivers the unique opportunity to interact with medical professionals in a non-clinical setting. Medical professionals specializing in various areas of interest in the PH field will be seated at specific tables for discussion with patients and caregivers over breakfast.
Saturday Lunch, June 18, 12:15 - 1:15 p.m.
Initiated at the first Conference in 1994, Journeys is PHA’s longest tradition. The Journeys Luncheon on Saturday afternoon highlights the experiences that patients and their care teams share together, from diagnosis to treatment to hope for the future. Using a format where three physicians give a presentation with one of their patients or caregivers, barriers are broken and partnerships underscored – the partnerships that make the PH community both unique and successful.
Founders’ Dinner: PHA: Change Built on Community
Saturday Dinner, June 18, 6:30 - 8:30 p.m.
This Saturday evening program is a Conference signature event. A highlight video is filmed during Conference programming on Thursday and Friday and is screened during Saturday’s dinner program. PHA’s Celebrity Ambassador will join us as outstanding PHA Member awards are presented following the screening of the video, and the program will also feature Rino Aldrighetti’s exit conversation with the community as PHA prepares for its first ever leadership transition (at Conference close).
PHA is Family: How Families Come Together to Fight PH
Sunday Brunch, June 19, 9:30 - 10:30 a.m.
A community united in common cause is the force that has helped the PH community – with a small patient population – grow far beyond its numbers and become what is truly a family. During brunch on Sunday, PHA will highlight the families of PHA who challenge the norm and fight together to end this terrible disease. This brunch will celebrate the past, present and future families of PHA.