Connect Online

“The PHriends I have made here have taken a little bit of the pain and hurt involved with this disease when no one else understands what I'm going through.”


 Online community meet-up at 2008 ConferenceOnline community meet-up at 2008 Conference

You can connect with others right now online! Whether you prefer the discussion boards, an online community or daily online support group chats -- or all of them -- the tools are easy to use requiring no special computer skills. So join one or as many of these groups as you like and you'll find you start making some fast PHriends even though you've never physically met.

  • myPHA
    PHA's online social network for patients and their loved ones is home to hundreds of community members. Joining is free and easy, and will give you access to our most comprehensive resource for online connection and support.
  • Facebook Groups
    PHA hosts Facebook groups for the following communities:
    • PHA Teens
    • SuPer Heroes: Long-Term Living with Pulmonary Hypertension
    • Generation Hope: Young Adults with Pulmonary Hypertension
    • PH Plus: Pulmonary Hypertension and Associated Conditions 
    • PHA CTEPH: Chronic Thromboembolic Pulmonary Hypertension
  • Online Daily Chats
    Attend daily online support group chat meetings.
  • PHA PHriends: Email Mentors
    Email with an experienced patient or caregiver who can help you find the information and support you're looking for.
  • RareConnect Community
    Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.
PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.