Connect Online

“The PHriends I have made here have taken a little bit of the pain and hurt involved with this disease when no one else understands what I'm going through.”


 Online community meet-up at 2008 ConferenceOnline community meet-up at 2008 Conference

You can connect with others right now online! Whether you prefer the discussion boards, email group messages coming right into your Inbox or daily online support group chats -- or all of them -- the tools are easy to use requiring no special computer skills. So join one or as many of these groups as you like and you'll find you start making some fast PHriends even though you've never physically met.

  • Discussion Boards
    Share information and support on PHA's popular discussion boards.
  • Email Groups
    Stay in touch with PHers via email in the general community group, special interest groups such as parents or young adults, groups to share tips on getting involved in advocacy and awareness, or networking groups for leaders and medical professionals.
  • Online Support Group Chats
    Attend daily online support group chat meetings.
  • PHA Teens Social Network
    Connect with other teen PHers on a social network just for you! PHA Teens is a private network for teens ages 13-18 living with PH.
  • Patient and Caregiver Mentor Program
    Email with an experienced patient or caregiver who can help you find the information and support you're looking for.
  • RareConnect Community
    Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.
PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!

Medical Professionals

PHA has two membership networks for medical professionals.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.