“The PHriends I have made here have taken a little bit of the pain and hurt involved with this disease when no one else understands what I'm going through.”
| Online community meet-up at 2008 Conference
You can connect with others right now online! Whether you prefer the discussion boards, an online community or daily online support group chats -- or all of them -- the tools are easy to use requiring no special computer skills. So join one or as many of these groups as you like and you'll find you start making some fast PHriends even though you've never physically met.
PHA's online social network for patients and their loved ones is home to hundreds of community members. Joining is free and easy, and will give you access to our most comprehensive resource for online connection and support.
- Facebook Groups
PHA hosts Facebook groups for the following communities:
- PHA Teens
- SuPer Heroes: Long-Term Living with Pulmonary Hypertension
- Generation Hope: Young Adults with Pulmonary Hypertension
- PH Plus: Pulmonary Hypertension and Associated Conditions
- PHA CTEPH: Chronic Thromboembolic Pulmonary Hypertension
- Online Daily Chats
Attend daily online support group chat meetings.
- PHA PHriends: Email Mentors
Email with an experienced patient or caregiver who can help you find the information and support you're looking for.
- RareConnect Community
Share experiences and ask questions on these international online community groups for pulmonary hypertension and other rare diseases. Translations are available.