Board archives

Discussion Board

Note: Our discussion board is being phased out in the coming weeks due to the launch of myPHA, our online social network for PH patients and caregivers. myPHA features a robust platform for forums, and is free and easy to join! Visit myPHA today to connect with others and join the conversation.

Welcome to PHA's popular discussion board, formerly called message boards, where you can share information and support with other PHers and you're sure to make some true PHriends. The discussion board allows you to post and read messages online.

Please review our Netiquette/Terms of Use and Privacy Policy before using the discussion board.

Login Different than PHA Website

Your login user account for the discussion board is different than the login for this website. The discussion board is managed separately. If your board ID is not being used on this website, you can set them up to be the same.

Share Your Story and Passages

The discussion board is a great place to share your story and to pay tribute to those who have passed. We also have a program called Our Journeys where you can read and share your stories. We welcome you to send us your stories through the Our Journeys portion of the PH Community so everyone can share in them. Visit Our Journeys

Please direct any questions or concerns to

PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!


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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.