Visit a Local Congressional Office

Diane Ramirez
Diane Ramirez

“I first got involved with advocacy when my support group leader asked me to go with her and a few other group members to meet Senator Burr. I was really nervous sitting there. I was intimidated by his desk and all his pictures with the President and so on. Then, I looked down — he had no socks on! In my head I laughed. Then I relaxed and realized he was human. Yes he has a position of authority and can help us but he wasn't wearing socks!”
  - Diane Ramirez

Members of Congress have staff and offices in their local districts as well as on Capitol Hill in Washington, D.C. Organize a visit to one of these offices to bring attention to the individuals impacted by PH right in your community.

Identify your senators and representative and gather the appropriate contact information. If a Member of Congress has more than one office in your state, look for the one closest to you. Find contact information for Members of Congress.

Learn whether your Members of Congress are co-sponsors of the Tom Lantos PH Research and Education Act, or if they’ve co-sponsored in the past. PHA can help and you’ll be prepared to build a positive relationship by thanking your senators or representative appropriately for past or current support. Contact PHA for an update on your elected officials’ sponsorship status at Advocacy@PHAssociation.org or 301-565-3004 x749.

Call or email the appropriate local offices. Ask when the Member of Congress would be available to meet with you. If there is a long wait, consider asking to meet with a member of the health staff instead. View sample materials

Gather other community members. You don’t have to make your visit alone! For first time advocates, the support of 3-4 friends or family can make a congressional visit that much more enjoyable.

Contact PHA! We’ll send you briefing books to leave with your senators and representative during your visits.  We can also provide tips on preparing for your visit and help following up after your meeting. Contact 301-565-3004 x749 or Advocacy@PHAssociation.org.

 

Tips for Lobbying Locally

Congressional visit

Listen to the Lobby Locally! Visit Your Members of Congress without Leaving Your State conference call to learn tips for a successful and effective legislative visit in your district this August.

Listen to the Lobby Locally conference call

Photo ops

Elected officials will be happy for a photo op during your visit or support group meeting. PHA loves to include high resolution photos in Pathlight or on our website.

Bring your Community

Demonstrate the widespread impact of PH and the importance of our bill by gathering letters signed by your friends and neighbors and presenting them during your visit. Contact PHA to request letters at Advocacy@PHAssociation.org

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.