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As we worked on accrediting PH Care Centers, we learned that the best way to ensure quality of care and improve outcomes in pulmonary hypertension was through the creation of a patient registry. The PHA Patient Registry (PHAR) is the way forward to advance PH care; but it can’t happen without your support.
The PHA Registry will:
You can learn more about why PHAR is a necessary next step in the fight against PH in a letter from six members of PHA’s medical leadership, who are spearheading the program.
Creating and maintaining PHAR is a challenging undertaking. And that’s why we’re coming to you. We need community members, like you, who have the most to gain from the PHA Registry to invest in its creation.
When you make a gift to support the Registry today, your donation will be doubled thanks to a generous matching gift challenge. That means your donation to improve the lives of all affected by pulmonary hypertension will have twice the impact.
Join us with a gift today as we change the future of PH Care.
Read all of the ways you helped advance awareness, education, support, research and hope this year in PHA's 2014 Annual Report.
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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.