Donor Stories

Riley

Young Daughter Inspires Monthly Gift

Christina Buchanan’s 4 year old daughter, Riley, was diagnosed with pulmonary hypertension shortly after her birth. After Riley’s diagnosis, Christina found support at PHA. In December 2011 she wanted to do more to fight PH, so she decided to make a monthly gift to PHA for the Robyn Barst Pediatric PH Research Fund. Read more


Lauren-Murawski (Right) and friend, Colleen Connor

Hope Inspires PH Patient’s Friend to Join PHA’s Sustainer’s Circle

Lauren Murawski’s good friend Colleen Conner is a PH Patient. Impressed with Colleen’s eagerness to learn and education others about PH, Lauren decided to make a monthly gift in honor of Colleen. Lauren says, “I am honored to be a part of such an amazing group fighting for such an important cause!” Read more


Bonnie and Mike McGoon

McGoon Household Makes Investment in PHA a “Family Affair”

Bonnie and Michael McGoon see their involvement in the Pulmonary Hypertension Association (PHA) as a “family affair.” In their household, Mike and Bonnie have tried to instill a spirit of giving both time and resources. Read more


Christina Back

Patient Makes Every Dollar Count by Donating to PHA

As a tribute to PHA’s important work Tina supports PHA each year with an annual gift. “Pulmonary hypertension is a small community and PHA is a small organization,” Tina says. “But every dollar makes a difference in this fight. Through PHA you can see progress made in medical education, advocacy and support.” Read more


Phil and Sherry Paroian

Deep Sibling Bond Leads Brother to Honor Sister’s Memory

As two of five children in the Paroian household, Phil and Sherry had a special bond as the eldest in the family. Growing up one and a half years apart this brother and sister had a relationship that went beyond a kinship between siblings; they were friends. Read more

Torres-Gonzalez Family

Young Son Inspires Legacy Gift to PHA

Since Daniel Torres’ birth he has had to overcome obstacles that most young boys have not had to face. After the diagnosis Daniel’s doctor connected the Torres-Gonzalez family with the Pulmonary Hypertension Association (PHA). “Becoming a member of PHA was the best thing that has happened to us,” Martha says. “We were able to have access to information on treatments and we were able to hear the stories of others who were living with this disease. It gave us hope.” Read more

Mason Hoffman

PH Patient’s Courage Lives on in Others

Inspiration comes in many forms: a friendly welcome from a stranger, a new life lesson learned from a son, the open arms and ears of a friend, the unconditional love of a brother. Inspiration comes in many forms and according to those who knew him, Mason Hoffman embodied them all. Read more

Carl Hicks

Planned Gift Allows Board Member To Give Even More Back to PHA

Though hesitant at first to get actively involved in PHA Carl decided in 2003 that he wanted “to do something more.” He had been aware of PHA through our website and then Pathlight, PHA’s quarterly newsletter. Initially he sat in on a Board of Trustees meeting to observe. What he saw impressed him. Here, he says, was an association that turned “every dollar into three” and did something worthy “with every dollar they had.” He became a member of the PHA Board of Trustees in 2004 and later became its Chair. Read more

 


Srinivasan Family

Family Says, PHA Helped us “find our footing” 

Looking back, Hari and Subha Srinivasan can remember their son Aditya, experiencing his first symptoms of PH as early as 2002. Simple tasks such as going up steps proved challenging. Read more

Sandra Awood

Patient Pays it Forward with Planned Gift to PHA

At age 65 Sandra Awood was looking forward to retirement and planning a trip to Egypt with her family when she began noticing she would become out of breath doing the simplest of tasks. Walking up the stairs in her home was a struggle. Read more

Robyn Barst

PH Physician Makes Lasting Contribution to Field

Dr. Robyn Barst can still recall her introduction to pulmonary hypertension (PH) as a young doctor working as a clinical fellow in pediatric cardiology. Read more

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.