PHA Events

Topic: Group discussion

Leader: Bonnie Patricelli, Nancy Zeppa

Email: bonabona@comcast.net, nancyzep214@gmail.com

Phone Number: 856-904-6867

Topic: Zoom check in & PHA 2024 Conference.

Leader: Diane Leavitt

Email: dleavitt1616@gmail.com

Phone Number: 207-776-0113

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Ronald Zolty, MD

Sponsor: Bayer Healthcare

Leader: Bill Kolm

Email: handymankid@cox.net

Phone Number: 402-572-1238

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

Topic: Social gathering

Leader:  Michelle Reller

Email: mlreller@yahoo.com

Phone Number: 812-489-1069

Topic: Emergency Preparedness

Speaker: Mikayla Lee, MSW Student

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

Topic: The New Normal: Life After Diagnosis of PAH

Speaker: Katherine Boggs, PA

Sponsor: Janssen Pharmaceuticals

Leader: Lisa Laughlin, Pam Johnson

Email:lisa_laughlin@trihealth.com, pamjohnson@trihealth.oom

Phone Number: 513-865-1289, 513-246-4054

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

Topic: PAH Emergency Preparedness

Speaker: Taylor Kilbride, MSN, RN, PHN

Sponsor: CVS Pharmacy

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

Topic: Walk for Your Wellbeing

Speaker: TBA

Sponsor: United Therapeutics Corporation

Leader:  Carissa Tellinghuisen

Email: cvipahinbox@bannerhealth.com

Phone Number: 970-810-3776

Topic: Coffee and open discussion

Leader: Alice M Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

Topic: PAH Emergency Preparedness

Speaker: Donna Dhayer, RN, BSN

Sponsor: CVS Pharmacy

Leader: Karen Sawyer

Email: Luluidapple@gmail.com

Phone Number: 517-420-6457

Topic: Possible New PAH Medications

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

Topic: Tips for Being an Empowered Patient with PAH

Speaker: Abhijit Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Doug Taylor

Email: DTaylorSF@aol.com

Phone Number: 803-465-2139

Topic: Preparing for the Anderson, SC PH Walk

Speaker: Abhijit Raval, MD

Leader: Kelly Dickson

Email: andersonphriends@gmail.com

Phone Number: 864-512-6625

Topic: General Discussion

Leader: Leslie Polss, Coleen Makovicz

Email: lpolss@msn.com, erte9355@hotmail.com

Topic: Meet-n-Greet

Speaker: Lakota Spoolman, PHA support group leader

Leader: Lakota Spoolman

Email: phlasvegasgroup@yahoo.com

Phone Number: 702-600-7249

Topic: Diagnostic Testing

Speaker: Simone Hannah-Clark, NP

Leader: Rachel Potter

Email: respiratoryinstitute@mssm.edu

Phone Number: 212-241-5656

Topic: General Discussion

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker:  Valerie Laroy, NP

Sponsor: Bayer Healthcare

Leader: Diane Brackin, Andrea Redstone

Email: dsmith4@ecommunity.com, ARedstone@ecorm,unity.com

Phone Number: 317-621-8486, 317-621-8656

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Topic: General Discussion

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

Topic: Patients and Caregivers – Support for all Affected by PH

Speaker: Brandi Orr, APRN

Leader: Brandi Orr

Email: brandi.bolton-orr@imail.org

Phone Number: 801-507-4699

Topic: Pulmonary hypertension: Understanding the Basics (CTEPH)

Speaker: Alvaro Aranda, MD, Neumologo

Sponsor: Bayer Healthcare

Leader: Ms. Patricia Faria

Email: Pfaria1456@gmail.com

Phone Number: 787-383-4629

Topic: Building a Toolkit for Living with Chronic Illness

Speaker: Sara Licata, LMSW, and , Susie McDevitt, DNP, ACNP

Leader: Beverly Lipmyer

Email:beverlylip@comcast.net

Phone Number: 734-355-0295

Topic: PH Meds – Present and Future

Speaker: Scott Visovatti, MD

Leader: Tiffani Brown, Debbie Kittel

Email: tiffani9094@gmail.com

Phone Number: 614-325-3941, 614-203-5006

Topic: Traveling with PH

Speaker: Sophia Esteves, Global Patient Advocate & PHA Support Group Leader

Sponsor: Accredo

Leader: Sophia Esteves

Email: ThePHWarrior@Gmail.com

Phone Number: 210-464-8922

Topic: Meet and Greet a PH Provider to Discuss Disease State Management Strategies

Speaker: Lori Reed, Nurse Practitioner

Leader: Nesha Ridings

Email: AldSupport@piedmont.org

Phone Number:770-819-4586, 404-350-2427

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

Topic: Book Club: How To Be Sick by Toni Bernhard

Leader: Alicia Kubes

Email: alicia.kubes@nyu.edu

Phone Number: 201-874-4118

Topic: Risk Score – meaning and use

Speaker: Jared Wilkinson, MD

Leader: Betsie Miklos, Beth DeCnstofaro

Email: betsie.miklos@gmail.com, bethd0323@gmail.com

Phone Number: 703-244-7517, 703-577-4779

Topic: Meet and greet

Leader: Jeri Nudell

Email: sunflowerjeri@icloud.com

Phone Number: 605-591-0167

Topic: Tips for Being an Empowered Patient with PAH

Speaker: Jaqueline Brewer, NP, BSN, PH clinical coordinator

Sponsor: Janssen Pharmaceuticals

Leader:  Karen Sawyer

Email: Luluidapple@gmail.com

Phone Number:517-420-6457

Topic: Candle Making Activity

Leader:  Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897