What's ahead for ph advocacy in 2013?

January kicks off the first session of the 113th Congress. The start of this new Congress “resets” the legislative clock – any proposed legislation that did not become law by the end of 2012 will need to begin the process again. PHA is pursuing opportunities to build on our past legislative successes in ways that will improve life for pulmonary hypertension (PH) patients and their loved ones. Here are a few examples:     

PH Bill
In 2013, we will introduce a new PH-specific bill designed to be as effective as possible in the current political climate. PHA’s Washington Representatives are working with our medical leadership to craft the new bill.

As a result of your advocacy efforts on previous PH-legislation, the National Institutes of Health (NIH) has steadily increased its PH research portfolio and the Centers for Disease Control has funded multiple PH awareness initiatives. Thank you!

Federal Budget
As you’ve probably heard, Congress passed a measure that postpones major cuts to most federal programs until at least March. However, the budgets of the NIH and other agencies are still at risk.

PHA knows that medical research is a top priority for the PH community. We’re following the federal budget process closely and will provide regular action alerts so that you can make your voice heard on this critical issue.

Healthcare Reform
We’ll share regular updates about implementation of the Affordable Care Act (healthcare reform) and changes of interest to the PH community.    In 2013, Resolve to Improve Life for All PHers

Building Partnerships
PHA is seeking ways to  build relationships and collaborate with other organizations on broad efforts that benefit the PH community. For example, we’re building our relationship with the Food and Drug Administration (FDA) in order to increase PH patients’ voice in FDA processes.

Stay Tuned! Your advocacy efforts will be an invaluable part of our success in 2013 and beyond (take a look back at our successes in 2012).

Want to stay updated on legislative news and advocacy opportunities? Contact Elisabeth at Advocacy@PHAssociation.org and ask to receive PHA's Advocacy in Action emails.