World Pulmonary Hypertension Day

World PH Day

The recognition and declaration of a World Pulmonary Hypertension Day is a step forward in the consolidation of worldwide PH awareness. World PH Day will focus on the importance of improving the quality of life and life expectancy for more than 25 million people living with PH worldwide. Pulmonary hypertension can be a fatal disease that is difficult to diagnose.

Join the worldwide campaign!

You can get involved with World Pulmonary Hypertension Day from anywhere in the world.

  • Add your photo to the Worldwide Photo Mosaic
  • Spread the word online
  • Share with your local media
  • Visit the World Pulmonary Hypertension Day website to learn more about global efforts to fight PH

History

In 2012, a program and scientific symposium was held in Madrid, Spain, as the first World PH Day celebration. The day was officially endorsed by 22 patient associations, 10 rare and affiliated disease organizations and eight scientific societies.

May 5 was chosen as World PH Day because it is the anniversary of the first child's death in Spain from pulmonary hypertension as a result of toxic rapeseed oil more than 30 years ago. In 2013, the May 5 date was upheld as World PH Day by popular consensus.

Source: "Primer día mundial de la hipertensión pulmonar," Asociación Nacional de Hipertensión Pulmonar, diamundial.hipertensionpulmonar.es

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.