PHA TEAMS UP WITH SSA
An Insider’s Perspective
For pulmonary hypertension patients, applying for Social Security Disability (SSD) can be challenging. While 30% of disability applicants get approved in their initial filing, PH patients may be at a disadvantage because language in the Social Security Administration’s (SSA) Listing of Impairments does not properly include PH.
Since 2008, PHA has been working with SSA to update the Listing of Impairments, include PH in the Compassionate Allowance program and ensure that PH patients get onto disability as quickly as possible if they qualify.
A Brief Look Back
View PHA’s Statement on Disability
The SSA is still in the process of revising the listings. Any changes to federal regulations have to go through a multi-step process involving public comment periods. PHA will continue to advocate on behalf of the PH community. Stay tuned!
“I was pleased to have the opportunity to testify, because I know how hard it can be to receive Social Security benefits, due to my own condition, but also due to friends and family who clearly are unable to work and yet cannot seem to convey this to the Social Security Administration."-Ellen Harris, PH Patient
- November 2010: PH patient Ellen Harris brought the PH community one step closer to being among the 88 other disease states listed in the Social Security Administration’s (SSA) Compassionate Allowance program. Armed with a moving personal story, Ellen Harris delivered a poignant testimony that culminated in the recommendation of “Pulmonary Arterial Hypertension (PAH) – with NYHA/WHO class IV symptoms and/or severely reduced exercise capacity” as a compassionate allowance.
As with our efforts to update SSA’s Listing of Impairments, we continue to work closely with the SSA to ensure that qualified PH patients access their disability benefits as soon as possible.
Watch a recording of the hearing
Contact us with insurance questions, success stories, suggestions, or requests to volunteer.