ADDITIONAL INSURANCE RESOURCES

Casework & Financial Assistance

Caring Voice Coalition serves the comprehensive needs of individuals affected by serious and chronic disorders, through collaborative efforts and partnerships with organizations established to serve those patient populations. They have programs to help patients with insurance reimbursement, financial assistance, patient support services and public advocacy.

Update! Caring Voice Coalition provides the services formerly offered by PSI ACCESS. Please direct questions about disability benefit eligibility and appeals to Caring Voice Coalition. Learn more about CVC’s Insurance Education and Counseling Program. (PDF)

NeedyMeds is a nonprofit organization that helps patients who cannot afford medication or healthcare costs by connecting them to Patient Assistance Programs, government assistance programs, free clinics and other patient advocacy organizations that provide financial assistance.  All information is free, easy to access and updated regularly.

The NeedyMeds PH Resource Page is a resource page tailored specifically to pulmonary hypertension patients.  It includes an overview of PH, a comprehensive list of FDA-approved treatments and their respective Patient Assistance Programs, links to other patient advocacy organizations that work with the PH community and links to important pages on PHA’s website.


Chronic Disease Fund (CDF) helps underinsured patients with chronic disease, cancers or life-altering conditions obtain the expensive medications they need. CDF assists patients throughout the United States who meet income qualification guidelines and have private insurance or a Medicare Part D plan but cannot afford the copayments for their specialty therapeutics.

Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

For Children

Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance.

Legal Assistance

Advocacy for Patients with Chronic Illnesses provides information, advice and advocacy regarding retrieval of medical information, obtaining and keeping health insurance, obtaining coverage for your treatment, applying for SSDI and asserting your rights.

National Organization of Social Security Claimants' Representatives is an association of over 3,900 attorneys and other advocates who represent Social Security and Supplemental Security Income claimants. Members are committed to providing high quality representation for claimants, to maintaining a system of full and fair adjudication for every claimant, and to advocating for beneficial change in the disability determination and adjudication process.

Medicare, Medicaid and Government

Healthcare.gov is the official U.S. government site on healthcare reform. It provides information to help you understand the new law, tools to find insurance options, tips on how to stay healthy and a glossary to explain insurance terminology.

GovBenefits helps you to locate both your federal and state benefits.

The Centers for Medicare and Medicaid Services (CMS) administers the Medicare program, and works in partnership with the states to administer Medicaid, the State Children's Health insurance Program (SCHIP) and health insurance portability Standards.

Medicare.gov is the official U.S. government site for people with Medicare. Through this site you can find out more information about Medicare, what your plan covers, choosing Medicare plans and enrolling in Medicare.

Medicare Rights Center is a national, nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy, educational programs and public policy initiatives.

Medicare Interactive Counselor is a dynamic, independent online resource of free information that helps older adults and people with disabilities navigate the complex world of health insurance.

The U.S. Social Security Administration (SSA) delivers Social Security benefits and services through a nationwide network of over 1,400 offices.

Social Security Handbook on the web includes the provisions of the Social Security Act, regulations issued under the Act, and precedential case decisions (rulings). It is one of numerous publications about the Social Security programs. It is a readable, easy to understand resource for the very complex Social Security programs and services.

General Insurance Information

Consumer Health Insurance Guide (Kaiser Family Foundation) is a guide to handling disputes with your employer or private health plan. Use this guide to understand your coverage and learn how to make an effective appeal.

Health Insurance (Medline Plus) gives information on the latest health insurance news, health insurance overview, specific conditions, research, law and policy.

Health Insurance Action Center (Psoriasis Foundation) was developed to help people with psoriasis and psoriatic arthritis access the care they need. Each page in the directory compiles available information such as the website of the health plan, formulary (for prescription drugs) and medical policies.

Health Insurance In-Depth defines some basic health plan terminology, explains deductibles, co-insurance and co-payments and describes the legal protections associated with major medical insurance.

Health Insurance Info (The Georgetown University Health Policy Institute) provides a consumer guide for getting and keeping health insurance for each state and the District of Columbia - fifty-one in all. These Consumer Guides are available at this website and will be updated periodically as changes in federal and state policy warrant.

 

Q&A About Health Insurance (USHHS) helps you choose a plan that is right for you. Definitions of health insurance terms are also given in order to help you with your task.

 

 

Contact us with insurance questions, success stories, suggestions, or requests to volunteer.


PHA is proud to be able to make educational materials and programs like these available for free to everyone because of the generous support from members of the community just like you. Donations are welcome!

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.