Being a member of PHA is your first step to taking action in the fight against PH. Members of PHA are supporting expanded research and education, building awareness of PH and public support, and changing the history of this illness. By expanding our membership, we can do much more, much sooner.
Membership is on an annual basis. To fit each person’s needs PHA provides different types of membership. Click your choice of membership type to join through our secure online forms.
Individual - $15 Family - $35 Individuals and families may support PHA at higher membership levels. Every dollar means we can do more to serve patients and find a cure.
Supporter - $60 Leadership - $100 Committee of Ten - $1000
PHA understands how expensive this disease can be. Please contact Jessica at membership@PHAssociation.org or 301-565-3004 x122 to become a member even if you cannot pay.
Nurses, respiratory therapists, pharmacists or other non-MD medical professionals involved in the care of PH patients: please join PH Resource Network.
Membership Benefits
PHA offers a baker’s dozen of services for its patients and family members, as well as added services for physicians and other health care providers. Your membership in PHA helps ensure that we can continue to provide these services for those who need them.
Pathlight The official newsletter of PHA, Pathlight is our community’s newsletter. Pathlight provides inspiration and ideas from medical updates and reports on local events, to news about support group activity and so much more.
Persistent Voices Sent to members twice a year, Persistent Voices tells the moving stories of people who live with this illness every day.
Support Groups
From the first support group started in 1990 around a kitchen table in Florida, PHA grew to 45 in 2001, and now has more than 135. In many areas, patients have the opportunity to meet, learn from, and find common understanding with others in similar circumstances.
PHA website
Over 200,000 visitors a month can’t be wrong. Our website is an asset in so many ways. From its doctor and support group listings to its medical resources and Advocacy and Awareness sections, www.PHAssociation.org meets a variety of needs of patients, family members, and professionals.
Online Opportunities for Connection
Get connected with other PH patients and family members even if you can’t be with them in person. PHA provides general and specialized message boards for patients and caregivers. We also offer a variety of listservs for PHers to send messages to one another and host regularly scheduled chats in our chat room. Visit our website to sign up!
Helpline: 1-800-748-7274
The Helpline is one of PHA’s oldest and most valued services. More than 15 volunteers take turns staffing the PHA Patient-to-Patient Telephone Helpline. Callers–whether they are newly diagnosed or living with the disease for many years–reach a friendly and knowledgeable volunteer from the comfort of their own home.
PHA News A bi-weekly e-mail newsletter bringing over 6,000 subscribers the latest news on PH and PHA activities. Subscribe today on the PHA home page.
Educational and Networking Opportunities
PHA holds an international conference every two years where patients, caregivers, physicians and other health professionals come together to network and get updates on the latest information on research, treatments and coping with PH. Our 2006 Conference drew over 1,100 people to Minneapolis, Minnesota. Our next conference will take place June 20-22, 2008, in Houston, Texas. PHA also co-sponsors six regional medical education sessions each year around the country. These one-day events are excellent opportunities to learn the medical basics of PH and meet specialists in your area.
Pulmonary Hypertension: A Patient’s Survival Guide This 280+ page book, written by a patient and medically reviewed, has been deemed “awesome, comprehensive and patient-friendly.” It presents the illness in a very human and readable way. Many doctors provide it to their patients. It is also available from PHA at minimal cost and PHA members receive a discount.
Insurance Issues PHA’s insurance guide answers many of your questions about coverage and benefits.
Advocacy Tools PHA’s advocacy efforts started small, but now our members make a BIG impact. Our 435 Campaign and online advocacy tools provide you with everything you need to contact your elected leaders and make your voice heard. Our members regularly communicate with their U.S. senators and representatives as well as local government officials. Together, we are making a difference! To get involved, check out our online advocacy section or contact Katie in the Advocacy and Awareness Department at 301-565-3004 x109.
Awareness Raising Opportunities Take action to raise awareness and help save lives! PHAction provides information, guidelines, and step-by-step advice for people who are interested in PHA’s proactive initiatives, such as PHAware and Our Journeys. No matter what your experience level is, there is something for you. Get all the resources you need to successfully raise awareness locally, regionally and nationally. To learn more, visit our online awareness section or check out the Advocacy and Awareness section of Pathlight.
Research PHA began raising funds for research in 1999. To date, more than $3 million has been raised. PHA’s peer-reviewed Research Fellowship and our partnership programs with the American Thoracic Society (ATS) and the National Heart, Lung, and Blood Institute (NHLBI) are funding important new research. As of 2006, PHA’s current and past research grant programs will have leveraged over $4 million towards PH research when fully mature. More information on PHA’s research grant programs
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
Being a member of PHA is your first step to taking action in the fight against PH. Members of PHA are supporting expanded research and education, building awareness of PH and public support, and changing the history of this illness. By expanding our membership, we can do much more, much sooner.
Pathlight
