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Patient story

Debra Carrabbia

Hello my name is Debbie. I am 35 years old. I am married have 3 children. I first got diagnosed in June of 2006 and I did not know what to do. My family is so supportive. I was so depressed when I was diagnose all I did was cry all the time. I still do but not as bad, my children are still young and I want to be here to see them grow up. Right now I am taken this medicine called Revatio and I might have to get the Flolan pump next. I have been going on different web sites to learn more about this disease and I have this survival book and I got this web site out of it. That’s how I became a member. I am from Pittsburgh PA so if anyone is out there and would like to talk feel free to write.

Thank you.
113 Pleasant Ridge Road Mckees Rocks, PA 15136
Email: Dcrrbb@comcast.net

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.