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Books and Guides

Survival Guide

Pulmonary Hypertension - A Patient's Survival Guide

The premiere information resource for people dealing with PH.

PH | Transplant | Fen Phen | Scleroderma | Chronic Illness | Caregivers

 
Primary Pulmonary Hypertension Primary Pulmonary Hypertension
by Lewis J. Rubin and Stuart Rich
I Call My New Lung Tina

I Call My New Lung Tina
by Shirley Jewett

From the publisher: "I Call My New Lung Tina" is an enlightening supportive guide for anyone with a life-threatening illness to share with their families and doctors. This book captures the near-death experience in a way that is both useful and inspirational.

Organ Transplants: Making the Most of Your Gift of Life Organ Transplants: Making the Most of Your Gift of Life
by Robert Finn, Reg Green, Linda Lamb (Editor)
Dispensing With the Truth: The Victims, the Drug Companies, and the Dramatic Story Behind the Battle over Fen-Phen Dispensing With the Truth: The Victims, the Drug Companies, and the Dramatic Story Behind the Battle over Fen-Phen
by Alicia Mundy
The Scleroderma Book: A Guide for Patients and Families The Scleroderma Book: A Guide for Patients and Families
by Maureen D. Mayes
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Finding the Joy in Today: Practical Readings for Living With Chronic Illness
by Sefra Kobrin Pitzele

Book Description: These daily readings offer inspiration and hope as they address the physical, emotional, and spiritual challenges faced by people who have a chronic illness and by their caregivers, helping both regain happiness and peace of mind by focusing on the joy to be found in each day. Key topics include living in the moment, giving and receiving, spirituality, choices, adjustment, and change

Reader Review: This book is a wonderfully, insightful volume that gives you just enough to ponder for each day. I find myself going back throughout the day to reread today's snippet. I have found many of these "daily reading books" to be repetitive and dull, but this one is great!

Primary Pulmonary Hypertension

Mosaic Moments: Devotionals for the Chronically Ill
by Lisa Copen

Editorial Reviews: Roberta Messner, Ph.D., R.N., author - Validated me [more] than anything I have ever read... by real people who live in the trenches of chronic illness.

cover

A Delicate Balance: Living Successfully with Chronic Illness
by Susan Milstrey Wells

Reader Review: One of the Best Chronic Illness Books on the Market
This is an incredibly well written book with a balance between narrative insights and valuable technical information. The author is quite candid in her personal experience with chronic illness and the resources at the end of the book are excellent and not the usual "run of the mill". I love her quote about the importance of first person narratives. "For those of us who are ill, chronic illness sets us apart. But when we read about the experiences of others, we realize we are not alone and that healing is available to all of us, regardless of our disease."

cover The Art of Getting Well: Maximizing Health and Well-being When You Have a Chronic Illness
by David Spero, Martin Rossman

Reader Review: The hard thing about living with a chronic illness is that you have to deal with it on so many levels: physical symptoms, the choice of caregivers--and then the job of relating to them, information from the internet, lifestyle changes, emotions, spiritual dimensions, and more. The unique thing about this wise and compassionate book is that it addresses issues of living with a chronic illness on all those levels and more, with a gentle, down-to-earth humor that provides its own emotional support on the spot....This must be because the author is both a nurse and a person living with MS--as well as a very talented writer.

A Whole New Life

A Whole New Life: An Illness and a Healing
by Reynolds Price

reviewed in the Southern Colorado Support Group's August newsletter

cover

From Grim to Green Pastures: Meditations for the Sick and Their Caregivers
by Richard L. Morgan, Arthur W. Frank

...gleaned from the author's own experiences as a hospital chaplain and from his journals written while recovering from surgery himself.

cover Beyond Chaos: One Man's Journey Alongside His Chronically Ill Wife
by Gregg Piburn

Reader Review: There is more to Beyond Chaos by Gregg Piburn than meets the eye. Billed as "One Man's Journey Alongside His Chronically Ill Wife", it is not just a story of how one couple dealt with the challenges of chronic illness. It is also a guide to improving your communication skills while exploring motives of self and applying your personal growth
to marriage, parenting and other relationships affected by chronic illness. ...This book definitely operates on more than one level and is more than a guide for "caretakers" or an insightful view of the other side of the chronic illness experience for "patients."

Mainstay: For the Well Spouse of the Chronically Ill
by Maggie Strong

Reader Review: When my husband was diagnosed with a chronic illness in 1992, I was totally unprepared for the major lifestyle changes that it brought about, even though I am a nurse. When I found "Mainstay", it was as though I was no longer alone. There was someone who not only understood but who was able to clearly articulate the experience. The illness and the circumstances were different but the feelings were so similar. The book also gives realistic and practical ways to survive as a well spouse.

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