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PH Tips

Suggestions from Working PH Patient

  • If you need a refrigerator or freezer at work for your meds, the Americans with Disabilities Act requires your employer to provide one, as well as to make other reasonable accommodations to allow you to do your job.
  • If you don’t treat your disability like a big deal, others won’t either.
  • If you sign up for health insurance the first time it’s offered you may not have to take a physical or worry about preexisting conditions. (Call ACCESS before changing or quitting jobs. See Chapter 13.)
  • If you run into discrimination because of your PH, your union can help fight for your rights.

As treatments improve, more of us will be able to work. The Ticket to Work and Work Incentives Act of 1999 pays benefit planners (who work for nonprofit groups or state agencies) to advise persons who now receive Social Security disability benefits, but who want to return to work. The planners will explain SSA’s work incentives, how going back to work will affect your benefits, and what vocational and rehabilitation and other support might be available. We suggest, however, that you first contact the lawyers at ACCESS if you are thinking of going back to work, and talk to them before you talk to a benefit planner.

 

 

 


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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

Questions about the site? email web@PHAssociation.org

Pulmonary Hypertension Association
801 Roeder Road, Ste. 400
Silver Spring, MD 20910

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