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Patient Resources

  • ACCESS Advocating for Chronic Conditions, Entitlements and Social Services
  • Air Charity Network (ACN), formerly Angel Flight America, provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
  • Air Compassion America® is a non-profit patient advocacy/assistance organization established to help locate and coordinate bed-to-bed air ambulance service. ACAM’s mission is to help patients and families undergoing a difficult health crisis by offering them compassionate counseling and working to lower air ambulance and medically assisted travel costs.
  • AirLifeLine is a national non-profit charitable organization of over 1,000 private pilots who fly ambulatory patients who cannot afford the cost of travel to medical facilities for diagnosis and treatment. Our pilots donate their time, aircraft and fuel to make this air transportation service totally free of charge for patients who qualify. 1-877-AIRLIFE.
  • Angel Flight is a program that helps arrange free flights for people needing medical care.
  • Caring Voice Coalition serves the comprehensive needs of individuals affected by serious and chronic disorders, through collaborative efforts and partnerships with organizations established to serve those patient populations. They have programs to help patients with insurance reimbursement, financial assistance, patient support services and public advocacy.
  • COTA Children's Organ Transplant Association. COTA's primary mission is to ensure that no U.S. citizen is ever denied a life-saving transplant or access to a transplant waiting list, due solely to the lack of funds. Our secondary focus is to promote organ donations and to provide public education on all aspects of the organ donation process. www.cota.org or 1-800-366-COTA, 2501 COTA Drive, Bloomington, IN 474403.
  • Heart1.com offers comprehensive cardiac care information, accomplished through news features, technology reports, searchable databases of the most prevalent venous conditions and possible treatments.
  • Make-A-Wish Foundation® of America is committed to making sure that every child with a life-threatening illness has an incredible wish experience that provides hope, strength and joy.
  • MedicAlert® Foundation is the nation's leading emergency medical information service protects and saves lives backed by the 24-hour Emergency Response Center that stands ready to transmit vital medical information. This information helps Members receive fast, accurate treatment. Thousands of lives have been saved and countless others have experienced quicker diagnosis and treatment, thanks to the long-standing relationship between MedicAlert® and emergency medical personnel. 1- 888-633-4298.
  • Mercy Medical Airlift® MMA’s mission is to ensure that no needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation; further, to ensure the provision of urgent transportation in situations of compelling human need and homeland security emergencies.
  • National Patient Travel Center provides no-cost, long-distance medical air transportation for patients that cannot afford to fly in order to receive specialized medical services.
  • Miracle Flights for Kids® is the nation's leading nonprofit charitable flight organization. Since 1985, we have continued to fulfill our mission to help families overcome financial obstacles and access the proper medical care and 2nd opinions for their seriously ill children. Miracle Flights takes great pride in knowing that 78% of all donations are allocated to helping sick children who have no other options get to their treatments.
  • National Foundation for Transplants. NFT's goal is that patients will not be deterred from a second chance at life simply because they cannot afford it.
  • National Patient Travel Center exists to facilitate patient access to appropriate charitable medical air transportation resources in the United States. The NPTC also exists to develop, administer and consolidate airline patient ticket programs and to operate various Special-Lift and Child-Lift programs on behalf of special disease organizations and/or clinical research centers in the United States. The NPTC also has the means for bringing ambulatory outpatients from many overseas locations to the United States.
  • The mission of the National Transplant Assistance Fund is to help raise funds for transplant and spinal cord injury patients by providing compassionate support, education and expertise to them, their families and communities.
  • NeedyMeds NeedyMeds is the place to learn about patient assistance programs and other programs designed to help those who can't afford their medicines. NeedyMeds is not a program. It's an information source.
  • HOPGENE Program for Genomic Applications at Johns Hopkins (authored by Reda Girgis, MD)
  • Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
  • Transplant Recipients International Organization, Inc. provides transplantation and organ donation information and resources for transplant candidates, recipients, donors, and their families. 1-800-TRIO-386.
  • Some useful information on hemodynamics and cardiac output
     

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

Questions about the site? email web@PHAssociation.org

Pulmonary Hypertension Association
801 Roeder Road, Ste. 400
Silver Spring, MD 20910

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