Zebra PHriends of North Texas PH Support Group

The Zebra PHriends of North Texas PH Support Group

The Zebra PHriends of North Texas PH Support Group was featured on television on Good Morning Texas to talk about the group's fun walk in November! They had a member dressed up like a zebra, and everyone was wearing zebra print for the Sometimes it's PH early diagnosis campaign and periwinkle for PH.

The North Texas group

The North Texas group also brought patients, caregivers and PHriends together at a recent meeting. Group Co-Leader Marcia Beverly excitedly told us, "I'm flying high with the definition of success. … We had our monthly meeting, and I estimated 30, expected 45 and had 59 PHolks at the meeting!" Patients learned about traveling with PH at a restaurant that donated 15 percent of the proceeds to the group's fun walk. Education and fundraising in one!

 

This article originally appeared in the Winter 2012 issue of Pathlight.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.