Local Support Groups
Knowledge, support, hope and empowerment: just a few of the things a PHA support group can offer PH patients. No one should face this disease alone.
Support groups offer:
- Knowledge: Medical information delivered by PH experts and medical professionals
- Support: Coping skills shared by other patients and you
- Hope: An opportunity to interact and meet patients who have been managing their PH for one, five, 10... even 20 years or longer
- Empowerment: A way to get involved, give back and say you can be part of the solution when we find a cure one day!
There are more than 240 support groups and at least one new group is added each month. You are not alone and there's a good chance there's a group meeting near you.
Why I lead...
"I am a support group leader because I want to connect everyone together. I don't like thinking about the fact that there are people out there with PH and they could be feeling lonely or like they are the only ones with this illness..." – Heather Kirland, Treasure Valley, Idaho, PHA Support Group Leader
My first meeting...
"Before my first meeting I was confused and overwhelmed. It was a relief to me to find out other people had caregivers. I had really been feeling guilty about needing help. At my meeting, when I saw that my husband wasn’t the only person who had come along to help, I felt better about my health and needing assistance." – Sally Mackey, Sumter, S.C.