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Summer 2006, Vol. 5, No. 2

Editor’s Memo
 

Hands Across the Ocean: Building a Bridge to an International Pulmonary Hypertension Community

Dr. Valerie McLaughlinA vision that began 6 years ago in Chicago has become a dynamic reality. At the end of its conference in June 2000 the Pulmonary Hypertension Association (PHA) called its first meeting of international attendees. About a dozen international registrants initiated the formation of new relationships marked by continuing contact with PHA. Those of us who met with our internationally based colleagues at the Seventh International Pulmonary Hypertension Conference, held from June 23 to 25 in Minneapolis this year, realized how far we have come since that conference 6 years ago. We could only marvel at how the concept of an international meeting has grown.

A flourishing network of 20 associations in countries throughout the world is now linked with PHA, working toward cooperative strategies, and exchanging ideas and information on research. Groups are now serving patients in countries as diverse as Japan, The Netherlands, Israel, Italy, Singapore, Canada, Australia, Austria, Belgium, China, France, Germany, the United Kingdom, Ireland, Mexico, Portugal, and South Africa.

From that first meeting in 2000 the concept of an international pulmonary hypertension community, joined by organizations in many countries, quickly began to take shape. By 2002 more than 80 people from nations in Asia, Europe, North America, and Latin America, as well as New Zealand and Australia, attended an international planning session. Two years later, at the Sixth International Pulmonary Hypertension Conference, the agenda was expanded to include two separate sessions.

We are delighted to see these ideas moving forward, spearheaded by PHA in the United States, which accepted the challenge and agreed to act as the hub for organizations throughout the world. To facilitate and coordinate the growth of the international pulmonary hypertension community, PHA created an International Desk and hired an international program associate.

The next issue of Advances in Pulmonary Hypertension will feature comprehensive coverage of the Scientific Sessions during which a full day was devoted to presentations from nationally and internationally renowned experts. Many of these experts know firsthand the results produced by pulmonary hypertension associations in their respective countries.

Although they differ in their approach, thinking globally but acting locally to adapt to the particular needs of the pulmonary hypertension community within their country, they share PHA’s mission to increase awareness of and information about pulmonary hypertension, advocate for those with the disease, facilitate access to health services, promote research at leading academic centers, and provide patients, families, and medical professionals with an environment of education, friendship, and support.

As diverse as our international constituency has become, these differences begin to disappear at the international conferences where the underlying takehome message emerges time and again: Pulmonary hypertension is not a selective disease or endemic to any part of the world. By bringing together the resources from all of the countries affected we can indeed more effectively pursue a “Roadmap to a Cure,” the theme of this year’s international PHA conference.

Valerie V. McLaughlin, MD
Editor-in-Chief

 

 

Articles
 
Advances in Pulmonary Hypertension, Summer 2006, Vol. 5, No. 2

Click titles to read stories...

Profiles in Pulmonary Hypertension: Sheila G. Haworth, MD, Creator of the UK Network for the Care of Children with Pulmonary Hypertension, Reviews Milestones in Clinical Management (PDF)
Professor Sheila Haworth has had a lifelong interest in pulmonary hypertension. In the early years she concentrated on pulmonary vascular disease in children with congenital heart disease, carrying out clinico-pathological studies to improve the accuracy of predicting the risk of surgical repair of a cardiac abnormality.

Management of Idiopathic PAH in Children: Reexamining the Evolving Treatment Algorithm (PDF)
The treatment of pediatric idiopathic pulmonary arterial hypertension (IPAH) is challenging due to the serious nature of the disease, its rapid progression, and limited treatment options available for children.

Persistent Pulmonary Hypertension of the Newborn: Pathophysiology and Treatment (PDF)
Survival at birth requires an immediate and sustained fall in pulmonary vascular resistance from its elevated level in utero to a low resistance, high flow circulation after delivery.

A Classification System and Treatment Guidelines for PAH Associated with Congenital Heart Disease (PDF)
Congenital heart defects are among the most common congenital malformations at birth, with an incidence of approximately 8/1000 live births.

Roundtable Discussion:
Identifying the Complex Spectrum of Childhood PAH & Selecting Candidates for Aggressive Treatment (PDF)

 

PHA Announcements
 

Medical Education Sessions
(PDF)

7th International PH Conference
(PDF)

Diagnostic CD
(PDF)

K08/K23 Program Announcement
(PDF)

PH Clinicians & Researchers
(PDF)

PH Resource Network
(PDF)

 

 
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Notes
 

Editorial Advisory Board

Editor-in-Chief
Ronald J. Oudiz, MD
Associate Professor of Medicine
UCLA School of Medicine
Director, Liu Center for Pulmonary Hypertension
Division of Cardiology
Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center
Torrance, California

Immediate Past Editor
Vallerie V. McLaughlin, MD
Associate Professor of Medicine
Director, Pulmonary Hypertension Program
University of Michigan Health System
Ann Arbor, Michigan

Editor-in-Chief Elect
Richard Channick, MD
Professor of Clinical Medicine
Pulmonary and Critical Care Division
University of California, San Diego Medical Center
San Diego, California

Associate Editors
Erika Berman Rosenzweig, MD
Assistant Professor of Pediatrics
Department of Pediatrics
Columbia College of Physicians and Surgeons
New York, New York

Robert Frantz, MD
Consultant in Cardiovascular
Diseases and Internal Medicine
Assistant Professor of Medicine
Mayo Clinic College of Medicine
Rochester, Minnesota

Srinivas Murali, MD, FACC
Professor of Medicine
Drexel University College of Medicine
Director, Division of Cardiovascular Medicine
Medical Director, Gerald McGinnis Cardiovascular Institute
Allegheny General Hospital
Pittsburgh, Pennsylvania

Publisher
Pulmonary Hypertension Association
Jack Stibbs, Board Chair
Rino Aldrighetti, President
Donica Merhazion, Medical Services Associate Director

Publishing Staff
Stu Chapman, Executive Editor
Susan Chapman, Managing Editor
Heidi Green, Associate Editor
Gloria Catalano, Production Director
Michael McClain, Design Director

PHA Office
Pulmonary Hypertension Association
801 Roeder Road., St.e 400
Silver Spring, MD 20910
301-565-3004, 301-565-3994 (fax)
www.PHAssociation.org

Provided with an unrestricted educational grant from Actelion Pharmaceuticals, U.S., Inc. and Accredo Therapeuticss.

© 2006 by Pulmonary Hypertension Association and DataMedica. All rights reserved. None of the contents may be reproduced in any form whatsoever without the written permission of PHA.

Editorial Offices
Advances in Pulmonary Hypertension
DataMedica
424 Dune Road
Westhampton Beach, NY 11978
Tel: 631-288-7733
Fax: 631- 288-7744

Advances in Pulmonary Hypertension is circulated to cardiologists, pulmonologists, rheumatologists and other selected physicians by the Pulmonary Hypertension Association . The contents of the articles are independently determined ly the Editor and the Editorial Advisory Board.

PHA's Scientific Leadership Council

Editorial Mission
Advances in Pulmonary Hypertension is committed to help physicians in their clinical decision making by informing them of important trends affecting their practice. Analyzing the impact of new findings and covering current information in the peer-reviewed literature, Advances in Pulmonary Hypertension is published four times a year. Advances in Pulmonary Hypertension is the official journal of the Pulmonary Hypertension Association.

Each article in this journal has been reviewed and approved by members of the Editorial Advisory Board.
 

Editorial Board

Todd Bull, MD
Division of Pulmonary Sciences and Critical Care Medicine
University of Colorado Health Sciences Center
Denver, Colorado

Murali Chakinala, MD
Director, Pulmonary Hypertension Clinic
Washington University School of Medicine
St. Louis, Missouri

Kristin Highland, MD
Assistant Professor
Division of Pulmonary and Critical Care
Director, Pulmonary Hypertension Clinic
Medical University of South Carolina
Charleston, South Carolina

Jim Maloney, MD
Associate Professor of Pulmonary and Critical Care Medicine
University of Colorado Health Sciences Center
Denver, Colorado

Ioana Preston, MD
Assistant Professor of Medicine
Tufts - New England Medical Center
Boston, Massachusetts

Zeenat Safdar, MD
Assistant Professor of Medicine
Department of Medicine, Pulmonary & Critical Care Section
Pulmonary Hypertension Center
Baylor College of Medicine
Houston, Texas

Rajan Saggar, MD
Assistant Professor
Division of Pulmonary and Critical Care
Medicine and Hospitalists
David Geffen School of Medicine
UCLA
Los Angeles, California

Robert Schilz, DO, PhD
Medical Director of Lung
Transplantation and Pulmonary Vascular Disease
University Hospital of Cleveland
Case Western Reserve University
Cleveland, Ohio

Francisco Soto, MD, MS
Assistant Professor
Director, Pulmonary Hypertension Program
Medical College of Wisconsin
Milwaukee, Wisconsin

Roxana Sulica, MD
Assistant Professor of Medicine
Albert Einstein College of Medicine
Director, Beth Israel Pulmonary Hypertension Program
Beth Israel Medical Center
New York, New York

 

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