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Summer 2006, Vol. 5, No. 2

Editor’s Memo
 

Hands Across the Ocean: Building a Bridge to an International Pulmonary Hypertension Community

Dr. Valerie McLaughlinA vision that began 6 years ago in Chicago has become a dynamic reality. At the end of its conference in June 2000 the Pulmonary Hypertension Association (PHA) called its first meeting of international attendees. About a dozen international registrants initiated the formation of new relationships marked by continuing contact with PHA. Those of us who met with our internationally based colleagues at the Seventh International Pulmonary Hypertension Conference, held from June 23 to 25 in Minneapolis this year, realized how far we have come since that conference 6 years ago. We could only marvel at how the concept of an international meeting has grown.

A flourishing network of 20 associations in countries throughout the world is now linked with PHA, working toward cooperative strategies, and exchanging ideas and information on research. Groups are now serving patients in countries as diverse as Japan, The Netherlands, Israel, Italy, Singapore, Canada, Australia, Austria, Belgium, China, France, Germany, the United Kingdom, Ireland, Mexico, Portugal, and South Africa.

From that first meeting in 2000 the concept of an international pulmonary hypertension community, joined by organizations in many countries, quickly began to take shape. By 2002 more than 80 people from nations in Asia, Europe, North America, and Latin America, as well as New Zealand and Australia, attended an international planning session. Two years later, at the Sixth International Pulmonary Hypertension Conference, the agenda was expanded to include two separate sessions.

We are delighted to see these ideas moving forward, spearheaded by PHA in the United States, which accepted the challenge and agreed to act as the hub for organizations throughout the world. To facilitate and coordinate the growth of the international pulmonary hypertension community, PHA created an International Desk and hired an international program associate.

The next issue of Advances in Pulmonary Hypertension will feature comprehensive coverage of the Scientific Sessions during which a full day was devoted to presentations from nationally and internationally renowned experts. Many of these experts know firsthand the results produced by pulmonary hypertension associations in their respective countries.

Although they differ in their approach, thinking globally but acting locally to adapt to the particular needs of the pulmonary hypertension community within their country, they share PHA’s mission to increase awareness of and information about pulmonary hypertension, advocate for those with the disease, facilitate access to health services, promote research at leading academic centers, and provide patients, families, and medical professionals with an environment of education, friendship, and support.

As diverse as our international constituency has become, these differences begin to disappear at the international conferences where the underlying takehome message emerges time and again: Pulmonary hypertension is not a selective disease or endemic to any part of the world. By bringing together the resources from all of the countries affected we can indeed more effectively pursue a “Roadmap to a Cure,” the theme of this year’s international PHA conference.

Valerie V. McLaughlin, MD
Editor-in-Chief

 

 

Articles
 
Advances in Pulmonary Hypertension, Summer 2006, Vol. 5, No. 2

Click titles to read stories...

Profiles in Pulmonary Hypertension: Sheila G. Haworth, MD, Creator of the UK Network for the Care of Children with Pulmonary Hypertension, Reviews Milestones in Clinical Management (PDF)
Professor Sheila Haworth has had a lifelong interest in pulmonary hypertension. In the early years she concentrated on pulmonary vascular disease in children with congenital heart disease, carrying out clinico-pathological studies to improve the accuracy of predicting the risk of surgical repair of a cardiac abnormality.

Management of Idiopathic PAH in Children: Reexamining the Evolving Treatment Algorithm (PDF)
The treatment of pediatric idiopathic pulmonary arterial hypertension (IPAH) is challenging due to the serious nature of the disease, its rapid progression, and limited treatment options available for children.

Persistent Pulmonary Hypertension of the Newborn: Pathophysiology and Treatment (PDF)
Survival at birth requires an immediate and sustained fall in pulmonary vascular resistance from its elevated level in utero to a low resistance, high flow circulation after delivery.

A Classification System and Treatment Guidelines for PAH Associated with Congenital Heart Disease (PDF)
Congenital heart defects are among the most common congenital malformations at birth, with an incidence of approximately 8/1000 live births.

Roundtable Discussion:
Identifying the Complex Spectrum of Childhood PAH & Selecting Candidates for Aggressive Treatment (PDF)

 

PHA Announcements
 

Medical Education Sessions
(PDF)

7th International PH Conference
(PDF)

Diagnostic CD
(PDF)

K08/K23 Program Announcement
(PDF)

PH Clinicians & Researchers
(PDF)

PH Resource Network
(PDF)

 

 
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Notes
 

Editorial Advisory Board

Editor-in-Chief
Richard Channick, MD
Professor of Clinical Medicine
Pulmonary and Critical Care Division
University of California, San Diego Medical Center
San Diego, California

Immediate Past Editor
Ronald J. Oudiz, MD
Associate Professor of Medicine
The David Geffen School of Medicine at UCLA
Director, Liu Center for Pulmonary Hypertension
LA Biomedical Research Institute at Harbor-UCLA Medical Center

Editor-in-Chief Elect
Erika Berman Rosenzweig, MD
Director, Pulmonary Hypertension Center, Columbia University Medical Center Associate Professor of Clinical Pediatrics (in Medicine)

Associate Editors

Kristin Highland, MD
Assistant Professor of Medicine
Division of Pulmonary, Critical Care, Allergy and Sleep Medicine
Medical University Of Carolina

Francisco Soto, MD, MS
Director, Pulmonary Hypertension Program
Pulmonary and Critical Care Medicine
Medical College of Wisconsin

Todd Bull, MD
Associate Professor of Medicine
Division of Pulmonary Sciences and Critical Care Medicine
University of Colorado Health Sciences Center

Robert Schilz, DO, PhD
Medical Director of Lung
Transplantation and Pulmonary Vascular Disease
University Hospital of Cleveland
Case Western Reserve University
Cleveland, Ohio


Publisher
Pulmonary Hypertension Association
Carl Hicks, Board Chair
Rino Aldrighetti, President
Sherrie Borden, Vice President, Medical and Patient Education

Publishing Staff
Managing Editor
Deborah L. McBride
McBride Strategic Services
mcbridedeb@aol.com
P: 773-348-5455
C: 312-307-5455
Design Director
Michael McClain

PHA Office
Pulmonary Hypertension Association
801 Roeder Road, Ste. 400
Silver Spring, MD 20910
301-565-3004, 301-565-3994 (fax)
www.PHAssociation.org

© 2009 by Pulmonary Hypertension Association. All rights reserved. None of the contents may be reproduced in any form whatsoever without the written permission of PHA.

Advances in Pulmonary Hypertension is circulated to cardiologists, pulmonologists, rheumatologists and other selected physicians by the Pulmonary Hypertension Association. The contents of the articles are independently determined by the Editor and the Editorial Advisory Board.

PHA's Scientific Leadership Council

Editorial Mission
Advances in Pulmonary Hypertension is committed to help physicians in their clinical decision making by informing them of important trends affecting their practice. Analyzing the impact of new findings and covering current information in the peer-reviewed literature, Advances in Pulmonary Hypertension is published four times a year. Advances in Pulmonary Hypertension is the official journal of the Pulmonary Hypertension Association.

Each article in this journal has been reviewed and approved by members of the Editorial Advisory Board.
 

Editorial Board

Charles Burger, MD
Medical Director, PH Clinic
Mayo Clinic
Jacksonville, FL

Karen Fagan, M.D.
Chief, Division of Pulmonary and Critical Care Medicine University of South Alabama

Eli Gabbay, MD
Lung Transplant Unit
Royal Perth Hospital

Nick Kim, M.D.
Associate Clinical Professor of Medicine
University of California San Diego

Deborah Jo Levine, M.D.
University of Texas Health Science Center at San Antonio
San Antonio, TX

Omar Minai, MD
Dept of Pulmonary, Allergy  and Critical Care Medicine

Myung Park, MD
Associate Professor of Medicine
Division of Pulmonary Sciences and Critical Care Medicine
University of Colorado Health Sciences Center

Fernando Torres, MD
Director Pulmonary Hypertension Clinic
UTSW Medical Center Dallas
University Hospital

Glenna Traiger, RN, MSN
Pulmonary & Critical Care
Pulmonary Hypertension CNS
University of California Los Angeles
Los Angeles, CA

R. James White, MD, PhD
Assistant Professor of Medicine, Pharmacology & Physiology
University of Rochester, Division of Pulmonary and CCM

Roham Zamanian, MD
Division of Pulmonary and Critical Care Medicine
Stanford University Medical Center

 

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