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find a Caregiver Mentor

As a PH caregiver, you’re the first person your loved one turns to for help, but sometimes you need help, too! Caregiver mentors can direct you to resources and provide support and advice so you don’t have to do it all on your own. 

Our email mentors are volunteer patients and caregivers. If you ever have any questions or concerns about anything you experience please contact us at Outreach@PHAssociation.org

Browse the lists below to choose the PH Email Mentor right for you.

Bill

Bill - Parent to his young-adult daughter with PH

Evan

Evan - Caregiver to her adult son with PH

mitzi

Mitzi - Caregiver to her teen-aged daughter with PH

Jane

Jane - Caregiver to her young-adult daughter with PH

Taylor

Taylor - Bereaved caregiver of a parent with PH

Joni

Joni - Spouse of an adult with PH

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.