Patient and Caregiver Mentors

Connect with a Mentor

Support is just an email away! Our team of mentors is standing by for patients, caregivers and parents looking for one-on-one, email-based support.

PH Email Mentors are caring and knowledgeable members of the PH community. They are available to answer questions or for ongoing email relationships up to three months in length. Mentors can't offer medical advice, but they can share what they've learned along the way, point you in the direction of information and resources of value, and work with you to develop strategies for coping with PH in your own life.  Our email mentors are volunteer patients and caregivers. If you ever have any questions or concerns about anything you experience please contact us at

Find a mentor by topic of interest
 Find a Caregiver Mentor!
Find a mentor by gender and age
Find a mentor by associated condition

Have a Quick Question?

Don’t have time to search through mentor profiles? Contact a PH Email Mentor through our “Ask-a-Question” form.


Participants may receive an anonymous follow-up survey about their experience.

This program is funded through an unrestricted educational grant from


Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

Meet Joni

Joni Berg

"My wife has had PH for over 13 years. We have three children. I love to help other patients and caregivers."

Meet Joni

Meet Anna

Anna Bower

"I am a young adult living with PH, attending school and spending time with family and friends. I have many hobbies to keep busy and happy."

Meet Anna

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.