Message
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2/26/08 Message from PHA
Please take a look at the above message from PHA about the purpose of the message boards, PHA's role on the boards, and the recent problems that have been occuring. |
PHA message boards were created to give patients and their loved ones a way to receive and give support and share information with others. PHA, as an organization, rarely takes part in the dialogue as we want the communication to flow openly among members of the PH community. Our hope is that everyone feels welcome and supported.
Please remember that all message board participants have something significant in common with you: their life has been changed by pulmonary hypertension. Beyond that, you may have different views of the world, but what brings you to the board is what you have in common. We encourage everyone to help ensure that conversations are productive and supportive.
While using these boards please keep the following guidelines in mind:
- These boards are intended to provide a meeting place for patients and family members to communicate with one another. They are not intended to provide medical advice on personal health matters, which should be obtained directly from a physician. PHA will not be responsible for visitors' actions taken as a result of their interpretation of information contained in these message boards.
- These boards are for PH patients and their family and friends, but they can be viewed by anyone. As such, please use care when posting messages. Due to the public nature, feel free to register with an online pseudonym instead of your real name if you prefer.
- Electronic messages lack the nuances of face-to-face and telephone conversations. When composing a message, please try to be as clear about your intent as possible, as to minimize offending others. When reading a message, please remember that the written word may be open to interpretation.
- These boards are a place for community and support. Messages with profane language or that contain harmful comments about an individual or group are prohibited and subject to removal. See below for details about reporting a problem message.
- Keep in mind that the subject of these boards is pulmonary hypertension. We encourage participants to minimize off-topic messages, but if you do post an off-topic message, please be sure to mark the box “Mark message as Off-Topic (OT)” when composing your message.
We hope the boards meet the needs of the community by providing an easily accessible way to communicate, exchange support and share information any time of any day. One of PHA’s primary goals is to end the isolation that can occur with a diagnosis of PH. Our hope is that these boards provide a welcoming and hospitable environment where that can occur.
If you would like to get in touch with PHA or report a problem, please contact our webmaster, Diane, at web@PHAssociation.org or 301-565-3004 x119. Be sure to provide the direct URL (web link) to the message post in question.
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| Board
Name |
Created |
Posts |
Last
Post |
PH General Discussions
A general discussion group for all friends and family facing PH. |
05-08-2002
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73240
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10-06-2008
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PH Parents
A discussion group for parents of children with PH. |
05-08-2002
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663
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10-06-2008
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PH Caregivers
A discussion group for those helping a loved one with PH. |
05-08-2002
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139
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09-15-2008
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PH Transplant
A discussion group for those who have gone through and those facing transplants. |
05-08-2002
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446
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09-19-2008
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Age, Dx, Location (Private Board)
Place to post your information and see others... |
10-02-2003
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413
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10-02-2008
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Passages
Remembering those who lost the battle with PH before a cure could be found... |
09-21-2004
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233
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06-17-2008
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Insurance (Private Board)
This board is designed as another resource for understanding your health insurance. It is meant to be a discussion group for those of you having difficulties with your health insurance providers. It is a way for those of you who have had successes to l |
02-08-2005
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68
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09-18-2008
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The PHAware Connection
Exchange questions and advice with others who are building awareness by sharing their stories with the media. Learn more about PHAware |
10-05-2006
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35
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08-19-2008
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