PHAnews
vol 2, Number 9
April 27, 2001
PHAnews is a bi-weekly internet information resource for patients and caregivers. If you have suggested items for upcoming issues please send a brief description and web link to PHAnews editor, Sally Maddox skmaddox@bellsouth.net Welcome to this resource from PHA!
A list of topics for this issue are:
1) Help for Pulmonary Hypertension (ARTICLE ABOUT PHA BOARD MEMBER CANDI BLEIFER)
2) New Method Could Aid Lung Donation
3) United Therapeutics Receives 90-Day Extension to Remodulin NDA Review
4) New Approaches to Pulmonary Hypertension
5) Total Organ Donation Rise More Than 5 Percent; Cadaveric Donation Increases 2.7 Percent
Help for Pulmonary Hypertension (ARTICLE ABOUT PHA BOARD MEMBER CANDI BLEIFER)
(Ivanhoe Newswire) -- For most of us, breathing is so automatic that we rarely give it a second thought. However, for patients with pulmonary hypertension every breath is a gasp for air. Now, thanks to a new drug, patients with this disease can breathe easier.
Mother, attorney, and aerobics instructor, Candi Bleifer of Los Angeles, Calif., did it all with ease. That is, until a rare disease took her breath away. Candi has pulmonary hypertension. Pulmonary hypertension, or high blood pressure in the lungs, made climbing a flight of stairs feel like a three-mile run.
http://www.ivanhoe.com/stream/helpforpulmonaryhypertension.shtml
New Method Could Aid Lung Donation
LONDON (AP) - Swedish doctors have pioneered a technique that could dramatically increase the number of lungs available for transplant and save the lives of many who would otherwise die waiting for a donor.
http://news.excite.com/news/ap/010315/19/lung-transplants
United Therapeutics Receives 90-Day Extension to Remodulin NDA Review
United Therapeutics Corporation announced today that the company and the Food and Drug Administration (FDA) have agreed to extend for up to 90 days the priority review period for the New Drug Application (NDA) for Remodulin (formerly UT-15) for the treatment of pulmonary arterial hypertension.
http://biz.yahoo.com/prnews/010412/dcth049.html
New Approaches to Pulmonary Hypertension
Careful evaluation will often reveal secondary--and perhaps reversible--factors contributing to pulmonary hypertension. For primary disease, there are now a variety of treatments, ranging from calcium channel blockers to lung transplantation.
http://www.hosppract.com/issues/2001/03/russo.htm
Total Organ Donation Rise More Than 5 Percent; Cadaveric Donation Increases 2.7 Percent
Organ transplants rose 5.4 percent in 2000 compared to 1999, according to preliminary data on
U.S. organ donors released today by the U.S. Department of Health and Human Services’ Health
Resources and Services Administration and the United Network for Organ Sharing.
http://www.hhs.gov/news/press/2001pres/20010416.pdf
