November's PH Awareness Month
is a special time for the PH community. It is an opportunity for
patients, family, caregivers and medical professionals to focus
attention on this illness - and thereby build solutions for the
future.
Upcoming
Events:
5
Tucson Support Group Education Booth, UMC Hospital (AZ)
6
Awareness Month Education and Outreach Booth at Local Mall (LA)
Journeys with Pulmonary Hyperten-sion: A day of education and
sharing for patients and families (MD)
6-7
Mountain Bike Race and Educational Booth at 15th Subaru Iceman
Cometh Challenge (MI)
7
RACE AGAINST PH 5k Run/Walk (CA)
8
Florida Support Groups Conference
9
PH Support Group Meeting and Luncheon (AZ)
11
Local News Interviews PH Doctor and Patient (AZ)
12
Blue Jeans for PH - AMPCO (TX)
PH Support Group Education and Outreach at Good Samaritan Hospital
(AZ)
13
Parent/Child PH Day at Childrens' Hospital (DC)
Michigan PH Awareness Luncheon and Conference (MI)
SILVER SPRING, Md., Nov. 1 /PRNewswire/
-- On Wednesday, October 27, 2004, at the American College of Chest
Physicians, Pfizer released their first clinical trial results for
use of Viagra™ (sildenafil) in the treatment of pulmonary hypertension.
The 12-week clinical trial, involving 278 patients, showed increases
in the six-minute walk test used as a standard in PH trials.
Bosentan Improves Quality of Life and Prognosis for Patients With Pulmonary Arterial Hypertension
ADELAIDE, Australia, Oct. 21 /PRNewswire-FirstCall/ -- Results showing that the use of bosentan (Tracleer(R)) in the treatment of pulmonary arterial hypertension (PAH) related to connective tissue diseases significantly improves patient quality of life (QoL)(1). These data were presented today at the annual scientific meeting of the American College of Rheumatology (ACR) in San Antonio, Texas.
PHA has updated the international
portion of its website to better reflect the progress
made toward strengthening the global PH community.
Such developments include
PHA's Sixth International PH Conference, increased global
communication, improved information sharing, new Memoranda
of Understanding, most recently with the Manitoba Pulmonary
Hypertension Support Group, working with members of the Mexican
PH association, AMHAP, to produce a Spanish translation of
PHA's Survival Guide, and much more.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information resource
for people dealing with PH -- they have ARRIVED and are ready to
ship!!!
The author, a PH patient herself,
knows what it is like to live with the disease. She talked to many
other patients, doctors, and researchers while writing the Survival
Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep
knowledge of PH edited the book for accuracy.
New edition contains a chart
of 15 drugs used to treat PH; results of recent
clinical trials;
in-depth discussion of PH secondary to other diseases
or conditions;
a new chapter on what to eat if you have PH; and much, much more!
The comment period has expired and the
FAA is in the process of reviewing the submissions and issuing a final
rule. Over 2,000 comments were received (mostly from individual patients
who require supplemental oxygen). In addition to patients, several organizations
(including PHA) and members of Congress weighed in on the proposal. It
appears the FAA is predisposed to incorporating many of the improvements
proposed by the community in the final rule. There is no timetable set
for the release of the revised rule, although something is expected in
November or December.
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
PHA has updated the 
