November's PH Awareness Month
is a special time for the PH community. It is an opportunity for
patients, family, caregivers and medical professionals to focus
attention on this illness - and thereby build solutions for the
future.
Encysive Pharmaceuticals Inc.
on Thursday said regulators designated its hypertension agent Thelin
as an orphan drug, giving the company a seven-year exclusivity
once the medication is approved.
Thelin is geared at treating pulmonary arterial hypertension and works by blocking
endothelin, which spurs the growth of smooth muscle in vascular
walls and causes blood-vessel constriction.
Suffering from Pulmonary Arterial Hypertension, Elise Firestone Beats
the Odds with Strong Resolve and Drug Treatment
At first glance, Elise Firestone is a vibrant, active young woman with more energy than most. What you do not see is an inspiring young woman fighting a deadly disease that could easily take her life. An energetic athlete and fitness buff all of her life, Elise was recently diagnosed with pulmonary arterial hypertension (PAH), a rare lung disease caused by high blood pressure in the lungs. Doctors told Elise she might never lead a normal life, let alone a physical one. Today, with personal determination and the help of a new oral drug, Elise has managed to achieve the impossible and is training to enter into her first fitness competition.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information resource
for people dealing with PH -- they have ARRIVED and are ready to
ship!!!
The author, a PH patient herself,
knows what it is like to live with the disease. She talked to many
other patients, doctors, and researchers while writing the Survival
Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep
knowledge of PH edited the book for accuracy.
New edition contains a chart
of 15 drugs used to treat PH; results of recent
clinical trials;
in-depth discussion of PH secondary to other diseases
or conditions;
a new chapter on what to eat if you have PH; and much, much more!
On Tuesday, PHA held it’s first-ever Congressional Luncheon
on Capitol Hill at the Rayburn House Office Building. The luncheon was designed
as an opportunity to educate members of Congress about pulmonary hypertension
(PH) and the Pulmonary Hypertension Research Act introduced by Representative
Kevin
Brady
(R-TX) and Senator John Cornyn
(R-TX) in their respective
chambers.
Modeled on the Lance Armstrong rubber
wristbands, the "PHenomenal Hope" wristbands will help to increase
visibility of the PH community. Available in quantites of 10 (10 wristbands
for $10), give several away to your friends and family members. For
larger quantites, simply enter 2 for 20, 5 for 50, 10 for 100, etc.
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
On Tuesday, PHA held it’s first-ever Congressional Luncheon
on Capitol Hill at the Rayburn House Office Building. The luncheon was designed
as an opportunity to educate members of Congress about pulmonary hypertension
(PH) and the Pulmonary Hypertension Research Act introduced by Representative
Kevin
Brady
(R-TX) and Senator John Cornyn
(R-TX) in their respective
chambers.
Modeled on the Lance Armstrong rubber
wristbands, the "PHenomenal Hope" wristbands will help to increase
visibility of the PH community. Available in quantites of 10 (10 wristbands
for $10), give several away to your friends and family members. For
larger quantites, simply enter 2 for 20, 5 for 50, 10 for 100, etc.
